"We vonden 20 jaar lang van niet, maar jullie hadden misschien toch een punt."

Artsen roepen MS-patiënten op die stamcelbehandeling in het buitenland hebben ondergaan
https://www.volkskrant.nl/wetenschap/artsen-roepen-ms-patienten-op-die-stamcelbehandeling-in-het-buitenland-hebben-ondergaan~b46c4beb9/
#MSwarrior #FuckMS

I had a terrible night with leg spasms last night. Very little sleep and just the awful inability to get comfortable, never mind to nod off. After pumping all night, they’re then so fatigued the next day too. Better today (I even managed some rowing this morning), but I now find myself dreading going to bed in case it happens again. It feels so arbitrary and all the gabapentin, baclofen, analgesics and medical cannabis in the world sometimes just won’t touch it.

#FuckMS #MS #MultipleSclerosis

My left ankle has seized up and my legs are fucked. It’s my day off exercise today, so it beats me why they’re playing up now. Just another gift from #MultipleSclerosis.

Well, #FuckMS, I’m going to sit here in a comfy chair by a radiator with my feet up and just read my book. There’s fuck all you can do about that.

Funny couple of days with the #MS. Did a 5k time trial on the rowing machines at rate 28. Felt okay, and I kept the rate alright (which I wouldn’t have been able to do last year)… but I was about 30 seconds slower than last month. Oh well. Today, I was coaching at the track. I don’t do the session, but I do trot around to offer coaching at strategic points. Today, it felt hard. My legs don’t want to work. I’m generally very philosophical and positive about this, but it’s fucking hard.

#FuckMS

I picked up my shiver squad badge at the lake this morning. 30 winter swims from the beginning of November. I absolutely love swimming in the winter and it’s a pleasure to be a part of this wonderful community.

I don’t even like cold showers, for goodness sake. This is my third year in a row getting this badge.

#ColdWaterSwimming #ExerciseAsTherapy #FuckMS

Well, #MultipleSclerosis certainly is a motherfucker.

https://www.theguardian.com/books/2026/mar/01/christina-applegate-ms-diagnosis-memoir-autobiography

#FuckMS #MS