«Rassegnati tu! Io ballo con Friedreich». La campagna di sensibilizzazione sulle atassie

Lanciata in occasione del 25 settembre, Giornata Mondiale sulle Atassie, vuole  alzare il sipario sui bisogni della comunità di pazienti colpiti da queste patologie  e delle loro famiglie

Alberta family dealing with rare disease while still reeling from dad’s murder

Nearly four years after their father and uncle were killed in shooting, an Alberta family is now struggling with a rare disease diagnosis.

Alberta family dealing with rare disease while still reeling from dad’s murder

Nearly four years after their father and uncle were killed in shooting, an Alberta family is now struggling with a rare disease diagnosis.

Alberta family dealing with rare disease while still reeling from dad’s murder

Nearly four years after their father and uncle were killed in shooting, an Alberta family is now struggling with a rare disease diagnosis.

Alberta family dealing with rare disease while still reeling from dad’s murder

Nearly four years after their father and uncle were killed in shooting, an Alberta family is now struggling with a rare disease diagnosis.

Alberta family dealing with rare disease while still reeling from dad’s murder

Nearly four years after their father and uncle were killed in shooting, an Alberta family is now struggling with a rare disease diagnosis.

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Montreal researchers join international study of rare genetic disease Friedreich’s ataxia

Friedreich's ataxia is more prevalent in Quebec and in Acadian regions of the Maritimes, home to the ancestors of many people from western France, according to researchers.