complexMElinda 🟦

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Homebound disabled complex-chronic illness patient leader & advocate. Co-founder/Co-chair #MEAction Maryland.

New York Times columnist Zeynep Tufekci has written about our group and how we've made some of the best #LongCovid research possible, despite being a small group of chronically ill people. She has very kindly chosen us as the nonprofit to donate to of the year, and we're deeply honored!

To read the piece: https://www.nytimes.com/2024/11/26/opinion/charity-holiday-gift-long-covid-research.html

And please consider donating: https://patientresearchcovid19.com/donate/

Opinion | Donate This Holiday Season: Long Covid Research Need Your Help

A group of long Covid patients is financing research and making progress.

The New York Times
@brianvastag PAC units are high-level care. Very attentive, only concern would be getting needed rest. Hopefully they are listening to her needs.

Last week, we released a new preprint on reinfections.

This paper details the impact of COVID-19 reinfections on both people with and without #LongCovid.

Overall, the odds of Long COVID increase with reinfections.

Read the preprint here (link also in bio):
https://www.researchsquare.com/article/rs-4909082/v1

Long COVID and associated outcomes following COVID-19 reinfections: Insights from an International Patient-Led Survey

Background: COVID-19 reinfections are common worldwide. Long COVID is a serious infection-associated chronic condition and a major public health concern. Using a patient-centered approach, we characterized the association between reinfections and Long COVID. Methods: We developed and dissemi...

We’re happy to announce a new
@patientled preprint on machine learning phenotypic with high-dimensional #LongCovid symptom data!

We used a dataset of 162 symptoms in 6,031 participants to explore making clusters of Long Covid patients. 1/

@brianvastag of course not a single word about Long Covid...
@brianvastag disappointed but not surprised he never considered not competing today. Not only for everyone he exposed, but also for him as with his pre-existing conditions he's high risk for long Covid
@brianvastag @meactnet πŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ