Katrin Crameri

77 Followers
83 Following
61 Posts

Without an appropriate data foundation, a learning healthcare system that benefits from research and innovation will not be possible. We need an overarching strategy for meaningful, targeted, value-adding, person-centric digitization, and modern infrastructures that allow secure and responsible usage of data.

Group leader at SIB, committed member of SPHN. Working to advance better research for better health.

#HealthData #FAIR #RWD #Interoperability #Standards

Based in Basel, Switzerland

Twitter@CrameriKatrin
SPHN websitehttp://www.sphn.ch
BioMedIT websitehttp://www.biomedit.ch
Instagram (private)kate_4now

Warum braucht es eine Initiative, die sich um Infrastrukturen bemüht, welche die Nutzung von Gesundheitsdaten insbesondere aus der Routineversorgung für Forschungszwecke ermöglichen?

Im Interview mit healthinal erklären Thomas R. Geiger und ich, warum es eine so grosse Herausforderung ist, Gesundheitsdaten für die Forschung nutzbar zu machen, und warum der Aufbau nachhaltiger Forschungsinfrastrukturen so wichtig für die Schweiz ist.

https://www.healthinal.com/de/healthterminal

@SIB

health terminal

health terminal bringt dir relevante Informationen rund um die Digitalisierung des Gesundheitswesens in der Schweiz direkt als Podcast in dein Ohr! Gemeinsam mit dir erfahren wir mehr über unser Gesundheitswesen und wie wir mit digitalen Tools echten Mehrwert ins System bringen können. Zusammen lernen wir in Interviews verschiedene Personen kennen, welche sich seit Jahren in der Branche bewegen. Wir hören Biografien und Geschichten von Unternehmen, tauschen uns über Learnings aus, halten uns up-to-date über aktuelle Veränderungen und wagen da und dort auch einen Ausblick in die Zukunft.

Die konzeptionelle Datenmodellierung komplexer medizinischer Prozesse ist eine riesige Herausforderung. Aber wenn wir es ordentlich machen, entstehen Datengrundlagen, von denen heutige sowie zukünftige Ärzt*innen und Forschende gleichermassen profitieren.

https://shorturl.at/cCEHK

@SIB

Katrin Crameri, PhD, MPH on LinkedIn: Gesundheitsdaten sind doch meist eh schon digital, nicht? Denkt man an…

Gesundheitsdaten sind doch meist eh schon digital, nicht? Denkt man an Laborwerte, Informationen über die Medikamente (die man gerade einnimmt), Krankheiten…

Tomorrow at 5pm, Patrick Hirschi from Universitätsspital Zürich and I will present the strategy and infrastructure components that will integrate imaging data and metadata into the data exploration ecosystem of the Swiss Personalized Health Network (SPHN), in which anonymized data from over 640'000 patients can already be queried today.

Dial in or step by: Auditorium of the Universitätsklinik Balgrist (Forchstrasse 340, Zurich).
👉 https://lnkd.in/d7HEzJmS
👉 https://lnkd.in/dPhY2MMV

Serena Bonaretti on LinkedIn: #ormircommunity #openscience #reproducibilityresearch #opendata

Hi! The Open and Reproducible Musculoskeletal Imaging Research (ORMIR) community is organizing a workshop entitled “Sharing and Curating Open Data in…

Thank you so much to everyone who supported us throughout this busy year in our mission to enhance the usability of health data for research. SPHN wishes you a tranquil and joyful holiday season 💫

@SIB

Bridging Clinical and Genomic Knowledge: We just published a pre-print describing the extension of the SPHN #RDF Schema for seamless integration and FAIRification of omics data.

Great collaboration with
TheHyveNL and the SPHN network experts 👏🙏

https://www.preprints.org/manuscript/202312.0373/v1

Bridging Clinical and Genomic Knowledge: An Extension of the SPHN RDF Schema for Seamless Integration and FAIRification of Omics Data

The Swiss Personalized Health Network (SPHN) is a Swiss research infrastructure initiative that aims to facilitate the exchange of health-related data in a FAIR manner. The SPHN Dataset and SPHN RDF Schema form an essential part of the SPHN Semantic Interoperability Framework, which currently covers mostly clinical routine data. To facilitate the integration of omics data produced by the SPHN National Data Streams, a genomics extension was developed. This was done in close collaboration with clinicians, researchers, bioinformaticians, and data managers, from Swiss university hospitals, academic research groups and the omics platforms. Here, we present the genomics extension of the SPHN RDF Schema, which can be used to semantically describe genomics experiments and covers both clinical and research domains. The schema centers around the general omics process flow, with concepts that denote the individual steps, such as sample processing, assay, and data processing. Genomics-specific specializations are provided, such as library preparation, sequencing assay, and sequencing analysis. The schema also facilitates in capturing other important omics metadata, such as information about the sequencing instrument, standard operating procedure, and quality control metrics. The extension aligns with existing semantic data models and reuses common biomedical vocabularies, such as EDAM, OBI and FAIR genomes, as value sets, thereby facilitating semantic interoperability. It will be used to FAIRify data that is produced within the Swiss network and to facilitate sharing this data as one knowledge graph for reuse among its participants.

The Swiss Medical Journal has published an informative summary of our efforts to make health data from routine care usable and sharable for research purposes.

The Swiss Personalized Health Network has achieved many of the its goals. But unfortunately, we are still miles away from a Swiss health data space and a digital "service public". But we'll keep at it!

Article DE: https://www.swisshealthweb.ch/de/article/doi/saez.2023.1250296756/
Article FR: https://www.swisshealthweb.ch/fr/article/doi/bms.2023.1250296756/
EN translation: https://shorturl.at/bkuGT

@SIB

Fortunately, medical informatics conferences sometimes turn into jam sessions 🙂

Das 1. MIRACUM-DIFUTURE-Symposium – Auftakt nach Maß https://www.miracum.org/2023/10/13/das-1-miracum-difuture-symposium-auftakt-nach-mass/

Das 1. MIRACUM-DIFUTURE-Symposium – Auftakt nach Maß › MIRACUM

Vom 09. – 10. Oktober zog es viele Angehörige der Medizininformatik-Initiative (MII) nach Erlangen. Denn dort fand das erste gemeinsame ...

Unlocking healthcare data for secondary use is a complex task.

Join our SPHN webinar to get to know the established infrastructures and processes at the Swiss university hospitals.

The data infrastructures of the university hospitals are an integral part of the SPHN ecosystem and have been built up and/or expanded during the SPHN funding period to enable cost- and time-efficient reuse of interoperable clinical data for research purposes.

@SIB

https://www.linkedin.com/feed/update/urn:li:activity:7119373103230525440/

Katrin Crameri, PhD, MPH on LinkedIn: #dataforhealth #interoperability #dataplatform #datadrivenhospital…

The secondary use of routine data from the health care system presents us not only with challenges related to infrastructures and data interoperability, but…

This study transparently summarizes the complex NHS data landscape and maps and characterizes all electronic data flows originating from NHS England primary and secondary care providers, flowing to and between visible data consumers.

It looks at privacy risks, capabilities, and positioning of secure data environments and builds on existing registries of NHS data assets with focus on comprehensiveness, data provenance, and data usage.

Excellent piece of work.

https://www.thelancet.com/action/showPdf?pii=S2589-7500%2823%2900157-7