@Kymberly I hear of nearly everyone who masks being quizzed when they go for appointments. I just didn’t understand the reality these medics are living in, where it’s not self evident and unremarkable to practice infection control in a hospital environment. I hoped it was just the UK but clearly not…
KatieAs
- 43 Followers
- 69 Following
- 101 Posts
creative, activist spirit, chronically ill, lesbian, she/her. lives by the sea, UK. #LwiththeT @pwME I still don’t feel safe with any healthcare professionals
@criquaer I had not realised. I am shocked and devastated for you. And I’m angry… how many more people do this government want to leave to die? (I’m wording this as mildly as possible as I don’t want to upset moderators!).
@criquaer I hope you can get more Easter treats yet! Why not!
@criquaer that’s good to hear Colin! I hope you can keep it on now that Easter is behind us. Has anything improved with your care? I have a friend reliant on social care and I know it has just gone from bad to abysmal for most people. It must be so scary to rely on a system that’s broken at it’s core. It is beyond desperate when you have reached out so many times and spent such a lot of precious energy articulating what’s happening and your needs, to have them continue to be dangerously ignored.
@criquaer it’s probably even more by now 😣 I hope something changes for you soon.
@Kymberly that’s very very inconsiderate. Hard to live with such long term noise intrusion like that.
@NikaShilobod @antinomy @counsellingkaren ha ha ha well I will when I work out how to do that kind of thing here! Breakfast first!
@p2173 @ahimsa_pdx yes I’m using it. I would say it is accurate in general although I don’t feel great when it says I’m stable and don’t do more usually as I’m quite severe and live a very routine life. I find it useful as it makes me evaluate what I can attempt and I usually accept that more rest is probably necessary!
The HRV is interesting. Mine is very low atm though I don’t feel especially worse, but I am reducing gabapentin so I will see if it follows that pattern.