ColleenSteckel

@ColleenSteckel@disabled.social
109 Followers
87 Following
303 Posts
#MyalgicEncephalomyelitis since 1989. Volunteer with www.MEadvocacy.org, founder ME-ICC & other marginalized diseases group on FB.
https://open.substack.com/pub/colleensteckelmeiccinfo
https://www.threads.net/@colleen_steckel

Latest article from View from the Trenches of #MyalgicEncephalomyelitis

The misinformation from the 1980s and 1990s continues to impede progress.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/history-of-myalgic-encephalomyelitis

History of Myalgic Encephalomyelitis

Wessely and 1990s research - the more you know!

View from the Trenches of Myalgic Encephalomyelitis

New article from View from the Trenches of #MyalgicEncephalomyelitis

A Life Hidden - courage of #pwME

Researchers meet at various conferences

Iron deficiencies too often overlooked

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2025-may-14?utm_source=share&utm_medium=android&r=deavh

News: 2025 May 14

A Life Hidden, Researchers meet, Iron deficiency

View from the Trenches of Myalgic Encephalomyelitis

Latest article from View from the Trenches of #MyalgicEncephalomyelitis highlights the challenges of May 12 awareness day.

Sharing accurate information is important.

#MEAwarenessDay

https://open.substack.com/pub/colleensteckelmeiccinfo/p/making-the-invisible-visible

Making the Invisible Visible

Myalgic Encephalomyelitis awareness - May 2025

View from the Trenches of Myalgic Encephalomyelitis

Latest article from View from the Trenches of #MyalgicEncephalomyelitis covers a variety of topics.

-Low blood volume
-ME Global Chronicle # 52
-Rapamycin study
-Far-UVC light
-In Bed I Cut Words

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2025-apr-11?utm_source=share&utm_medium=android&r=deavh

News: 2025 Apr 11

Low Blood Volume, MEGC #52, Rapamycin Study, Far-UVC Light, & In Bed I Cut Words

View from the Trenches of Myalgic Encephalomyelitis

Latest article from View from the Trenches of Myalgic Encephalomyelitis discusses research that may help people with ME.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/finding-hope-for-the-future?utm_source=share&utm_medium=android&r=deavh

Finding Hope for the future

Research that may lead to answers for myalgic encephalomyelitis

View from the Trenches of Myalgic Encephalomyelitis

What do we know about #MyalgicEncephalomyelitis? We know a lot more than many realize.

See latest article from View from the Trenches of Myalgic Encephalomyelitis about the International Consensus Primer.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/myalgic-encephalomyelitis-ic-primer

Myalgic Encephalomyelitis IC Primer

A powerful tool to educate about ME

View from the Trenches of Myalgic Encephalomyelitis

Latest article from View from the Trenches of #MyalgicEncephalomyelitis covers the Botkins project.

Mini robots that help homebound patients go out into the world virtually. (Requires helper to transport robot on outings)

https://open.substack.com/pub/colleensteckelmeiccinfo/p/botkins-robot-charity-project?utm_source=share&utm_medium=android&r=deavh

Botkins Robot - Charity Project

Robot offers access to activities

View from the Trenches of Myalgic Encephalomyelitis

View from the Trenches of Myalgic Encephalomyelitis

Latest article discusses research that shows a difference between the immune system issues seen in Severe ME patients compared to immune system issues seen Mild/Moderate ME patients.

#myalgicencephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/is-severe-me-a-separate-disease?r=deavh&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true

Is Severe ME a separate disease?

Research offers insight

View from the Trenches of Myalgic Encephalomyelitis
News - Jan 6, 2025:

-ME Global Chronicle # 51
-Updated Research Lists
-View from the Trenches of ME Table of Contents
-ME-ICC Info Table of Contents

#myalgicencephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2025-jan-6?utm_source=share&utm_medium=android&r=deavh

News: 2025 Jan 6

ME Global Chronicle #51, Updated Research Lists, View from the Trenches of ME Table of Contents & ME-ICC Info Table of Contents

View from the Trenches of Myalgic Encephalomyelitis
Holiday Season Thoughts

Surviving is a worthwhile goal

View from the Trenches of Myalgic Encephalomyelitis