RE: https://zeroes.ca/@datum/116642339052620266

I’ve had #fibromyalgia for 20 years. I can pinpoint when it started (I was taking 6.170 and thought it was RSI. I think I got a B in that class because I just couldn’t spend enough time at the computer to do all of the work).

This is the first time that I’ve tried to dedicate any significant time to trying to improve my quality of life since I was diagnosed 12 years ago. Because my concerns were dismissed as me being overworked, stressed or depressed. Even now it’s hard for me to explain to people what is going on. But the long COVID symptoms sound very similar and I’ve just been masking them for the last 20 years. It’s hard for everyone to believe because I’ve been reasonably “successful” in my life but I wake up and go to sleep in pain every day and have for 20 years. And doctors still don’t know how to do anything about it. There are only 5 medications that are FDA approved for fibromyalgia and and mostly they manage the symptoms because no one knows the cause.