HollieMay 11

RE: https://kolektiva.social/@aredridel/116552279213533823

This is helpful, I’ll be telling my doc about it.

By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.

#Fibromyalgia #MECFS

Show threadHollieK
@hollie It is incredibly useful. Not only does it give me a scale for any pain I have at any time, it gives me some small understanding of what your pain is like.
May 11 at 7:12amWeb
Show threadHollie6d ago
@HollieK72 Funny enough, it's giving ME a better idea of my pain? I posted that last night and all morning I've been thinking about it. I don't think I've realized how my expectations of what I should be able to do don't match what I'm dealing with.
Show threadHollieK6d ago

@hollie

There's quite a difference between avoid usual activities and prevents doing daily activities, as far as what you can actually do.

My husband commented that he's between 2 and 4 most of the time, which was news to me, and now I feel guilty about not realising.

Show threadHollie6d ago
@HollieK72 It really makes you realize how invisible pain can be!
Show threadHollieK6d ago
@hollie And how much people get told things like you can just push through it, as though the pain isn't really that bad.