I'm keen to learn about people living with #tinnitus

I have 4 types (in both ears):
- low hum
- high pitched squeal
- pulsatile
all the time, and also musical when I'm tired.

(People ask me why I'm angry all the time....sigh)

If you have tinnitus, what is it like?

Boosts appreciated!

Multiple choice options:

One type, constant
50.8%
Two or more types, constant
27.7%
Pulsatile
16.9%
Musical
4.6%
Poll ended at .
@kaffando And yes, #tinnitus sucks.

@paulk

Oh, indeed it does. Big time.

@kaffando Since when are you 'beeping'?
I got mine after a car accident in 1996 😬

@paulk

Ugh, that's a long time and awful way to develop it. Did the accident damage your ear/s?

One ear since surgery (tympanoplasty) in 1983, the other ear gradually joined in a few years later. Hearing loss in both ears hasn't helped.

It awful that there hasn't been more research and treatment options developed, as I think many people have it.

@kaffando Good grief, that's even longer than I have it.
Yes, a fast driving car smashed into the back of mine. Got a whiplash and this little present.

Losing your hearing must be horrible, then you only hear that cacaphony. I feel so sorry for you. I know of an experimental treatment from the Netherlands (where I live) which had some excellent results. Let's hope that develops fast.

@paulk

Oh, that's dreadful - such a random and horrible thing to come from a whiplash.

Yes, it's a bit ridiculous that my hearing is poor, but I can hear all these noises, loud and clear, ha!

Oh, I'll keep a look out for the work in the Netherlands. If you see anything published, feel free to pass it on. Great to see some good research being done.

Also, hello from down under! I'm in Melbourne, Australia.

@kaffando Good day! Nice to 'meet' you. Glad to say the whiplash is gone.

The article I referred to is from a Dutch news site Look here, this is where the Dutch article points at:
https://www.neurotherapeuticsjournal.org/article/S1878-7479(25)00261-2/fulltext

@paulk

Oh yes, I meant to add, I hope the whiplash is well gone!

Thanks so much for that article, I'll have a read of it. DBS seems a bit extreme, but then again, if it works....!

@paulk

That is a very interesting paper. Very small sample size of course, but hopefully the start of something better. Deep brain stimulation is natually very invasive, so risks & benefits would need to be carefully weight up, but this may lead to a treatment that isn't as invasive, which often happens in these sort of studies.

Thanks again, really great to read.

@kaffando Exactly. It's small but it's a step in the right direction. I was a bit surprised to find that tinnitus actually a brain 'damage' occurrence, not something inside the ear.

Glad you appreciate the read. All the little bits of hope help.

@paulk

Yes, the brain damage thing is really interesting and makes sense, really.

Thank you. Yes, every little bit helps! Have a very good day 🙂