I'm keen to learn about people living with #tinnitus
I have 4 types (in both ears):
- low hum
- high pitched squeal
- pulsatile
all the time, and also musical when I'm tired.
(People ask me why I'm angry all the time....sigh)
If you have tinnitus, what is it like?
Boosts appreciated!
Multiple choice options:
Ugh, that's a long time and awful way to develop it. Did the accident damage your ear/s?
One ear since surgery (tympanoplasty) in 1983, the other ear gradually joined in a few years later. Hearing loss in both ears hasn't helped.
It awful that there hasn't been more research and treatment options developed, as I think many people have it.
@kaffando Good grief, that's even longer than I have it.
Yes, a fast driving car smashed into the back of mine. Got a whiplash and this little present.
Losing your hearing must be horrible, then you only hear that cacaphony. I feel so sorry for you. I know of an experimental treatment from the Netherlands (where I live) which had some excellent results. Let's hope that develops fast.
Oh, that's dreadful - such a random and horrible thing to come from a whiplash.
Yes, it's a bit ridiculous that my hearing is poor, but I can hear all these noises, loud and clear, ha!
Oh, I'll keep a look out for the work in the Netherlands. If you see anything published, feel free to pass it on. Great to see some good research being done.
Also, hello from down under! I'm in Melbourne, Australia.
@kaffando Good day! Nice to 'meet' you. Glad to say the whiplash is gone.
The article I referred to is from a Dutch news site Look here, this is where the Dutch article points at:
https://www.neurotherapeuticsjournal.org/article/S1878-7479(25)00261-2/fulltext
Oh yes, I meant to add, I hope the whiplash is well gone!
Thanks so much for that article, I'll have a read of it. DBS seems a bit extreme, but then again, if it works....!
That is a very interesting paper. Very small sample size of course, but hopefully the start of something better. Deep brain stimulation is natually very invasive, so risks & benefits would need to be carefully weight up, but this may lead to a treatment that isn't as invasive, which often happens in these sort of studies.
Thanks again, really great to read.
@kaffando Exactly. It's small but it's a step in the right direction. I was a bit surprised to find that tinnitus actually a brain 'damage' occurrence, not something inside the ear.
Glad you appreciate the read. All the little bits of hope help.
It was a Wishbone Ash concert. The band insisted on using their own sound engineer in a venue that usually has good sound but now it was terrible. An old guy not knowing what to do with the acoustics of the venue kept turning the volume up. It hurt my ears. I should have left. I've felt that before and healed but now it left me with tinnitus
@jerry1970 Ouch, that stinks big. I wonder how many people get tinnitus through concerts where the volume it too loud. I hope it's not too bad for you.
@jerry1970 Yes, drowning it out is what I do too. Music all day.
kaffando
Paul - Antifa. LGBTQ+ safe.
Jerry 🇸🇪