🧵 Info on #MEAction's Millions Missing 2026 campaign!
https://www.meaction.net/millionsmissing26
International ME/CFS Awareness Day is coming soon - May 12!
ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) and Long Covid are disabling chronic illnesses that get far less funding for research than they deserve based on disease burden.
You can find some basic facts about ME/CFS here:
https://www.meaction.net/learn/what-is-me
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The #MEAction Millions Missing theme this year is "Frail & Furious"
Why frail?
New Medicaid rules in the US will force people with ME/CFS and Long COVID to work 80 hours per month or lose their government health insurance *unless* they get a "medically frail" exemption.
Help protect Medicaid access by signing this letter to the HHS Secretary:
https://actionnetwork.org/petitions/freakin-frail
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#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #USPol #Medicaid
In addition to working to protect Medicaid access, #MEAction is asking folks with ME/CFS and Long Covid to share their stories about what it’s like to live with a serious, complex medical condition.
See the #MEAction toolkit for details:
Actions are listed by "battery level" (low to high)
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#MillionsMissing 2026 Toolkit Governments and healthcare systems around the world fail to classify myalgic encephalomyelitis (ME) as a serious, complex medical condition, leading to significant neglect in medical care and social services. Over and over again, people with ME and Long COVID are ...
#MEAction will be holding two online storytelling workshops in April to help people craft their stories.
Tuesday, April 14, 4 pm Eastern:
https://us06web.zoom.us/meeting/register/_S6iUD9gS4aUqFg1Aoaqug#/registration
Thursday, April 16, 4 pm Eastern:
https://us06web.zoom.us/meeting/register/yFNB8b11To6LJQMlcFXQow#/registration
Both workshop dates will present the same information.
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#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #StoryTelling #Community
OK, I think that's it! 😁
I hope this helps folks get inspired to join in. No pressure! This is only meant for folks who are able to participate.
I've posted this same info on the Science for ME Forum so it's all in one place.
It has some extra links like Bluesky threads and a video (#MEAction posts on Bluesky but not Mastodon).
It's a public forum post, no need to be a member to read it:
https://www.s4me.info/threads/usa-news-from-meaction.19675/page-14#post-685022
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Ahimsa