Mastodawn

Today I got a diagnosis for a genetic condition that has no treatment other than pain management. It wasn't a surprise since I was diagnosed with a related condition 40 years ago and my kids were diagnosed with it over the past couple of years.

I'm currently trying to figure out if it is a relief to have the formal diagnosis so I can say "See it isn't in my head." or if it's depressing that after all this time I have the truth but it ultimately makes no difference because I'll still have to do everything I've been doing. It probably won't stop people from telling me to try yoga either.

#ChronicPain #ChronicIllness

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Kim Possible

@wulfric oh goodness.

For me, it helps to have a diagnosis (or several) so that people understand what I have is recognized formally. It changes very little: there's no cure. But, they can slow it down. It sounds like in your case, they cannot even slow it down. I am sorry. We need to do better, especially with genetically-linked conditions. Research is often geared toward developing medications for profit, not finding solutions, but rather treatments.

I do wish there were a way to get people to understand that we know they mean well, but if "one cool trick" actually worked, we'd all be doing it already.