Irene Zhang4d ago
Having taken my first serious break from work, I’ve realized that I have more #fibromyalgia symptoms than I previously thought. I had severe touch sensitivity which mostly seems controlled but I always chalked up the tiredness, soreness and poor sleep to stress. Does anyone else with fibromyalgia have recommendations or updates to the research from the last decade since I was diagnosed? I’d appreciate thoughts and support which I know I’ll find in my mastodon community!
Show threadInsecurity Princess 🌈💖🔥

@irene 💞 I don't know much about fibro but I noticed becoming a lot more aware of my ME/CFS challenges while taking my first serious break from work

(It's been almost a full year since I started seeking a specialist to help, and I'm still 2 months away from seeing a specialist, due to extended wait lists)

Apr 3 at 7:37pmWeb
Show threadMissConstrue4d ago

@saraislet @irene
I have fibro, rheumatic arthritis and lupus, just a whole host of autoimmune issues, and I stay pretty on top of white papers.

There hasn’t been much change in treatment modalities for fibro. First line is usually cymbalta, which is efficacious for a majority of patients. It worked for me for years, and then didn’t, so I stopped taking it. I was prescribed plaquenil for lupus, and it helped with fibro symptoms as well, but supplies were intermittent during COVID, then it went up to 600 a month, so I had to stop, when I went back to it after the gouging was over, I’d developed a serious reaction, so it’s off the list too, for me.

Mostly they recommend rest, heat, massage, etc. post menopause, there is research suggesting HRT is beneficial, but I’ve not tried it yet, gonna ask on my next visit.