Silkabelli (cittadina UE 🇪🇺)#ME/CFS patients, have you heard of the Perrin technique? I just read that someone got from bedbound to having quite a bit more life quality? #Covid #LongCovid
UndeadMinotaur@silkabelli.eurosky.social Correlation does not equal causation. Unless you literally tried thousands of therapies, perrin is nothing that is worth the effort. Most probable effect is placebo, highest risk is infection because it requires hands-on.
@silkabelli.eurosky.social
If you want some more solid data on actually meaningful treatments, scroll down to the datasets linked below this study.
https://www.pnas.org/doi/10.1073/pnas.2426874122
If you want some more solid data on actually meaningful treatments, scroll down to the datasets linked below this study.
https://www.pnas.org/doi/10.1073/pnas.2426874122
@silkabelli.eurosky.social Or check out any of the common treament guidelines, e.g. here
https://www.rthm.com/resources/blogs/long-covid-treatment-guide
or at mecfs.de
or at https://www.meduniwien.ac.at/web/fileadmin/content/auftritte/referenzzentrum_postvirale_syndrome/pdf-Dateien/PAIS_MECFS_Medikas_IND_off-label_Version_21.02.2025.pdf
https://www.rthm.com/resources/blogs/long-covid-treatment-guide
or at mecfs.de
or at https://www.meduniwien.ac.at/web/fileadmin/content/auftritte/referenzzentrum_postvirale_syndrome/pdf-Dateien/PAIS_MECFS_Medikas_IND_off-label_Version_21.02.2025.pdf
@silkabelli.eurosky.social Or check here https://www.fatigatio.de/aktuelles/detail/handbuch-me-cfs-patientenzentrierte-versorgung-interprofessionelle-handlungsempfehlungen
Neues Standardwerk zu schwerer Erkrankung ME/CFS
Das Fachbuch "Das Handbuch ME/CFS - Patientenzentrierte Versorgung und interprofessionelle Handlungsempfehlungen" von Dr. Lotte Habermann-Horstmeier bietet eine umfassende wissenschaftliche und praxisorientierte Grundlage für die Diagnose und Versorgung in Hinblick auf die schwere Erkankung ME/CFS.
elle@silkabelli.eurosky.social @neonsnake
afaik it's osteopathic pseudoscience. the ME association said:
“In the absence of any sound scientific evidence to support the model of causation upon which this alternative treatment is based, and the lack of any sound evidence from well conducted clinical trials to confirm the safety and efficacy of using osteopathy and lymphatic drainage to remove toxins from the body, this is not a form of alternative treatment for ME/CFS that is recommended by either the ME Association or the NICE guideline on ME/CFS.”
@silkabelli.eurosky.social @neonsnake
some additional thoughts here
https://www.reddit.com/r/cfs/comments/1ks3yw3/comment/mtip6q3/
some additional thoughts here
https://www.reddit.com/r/cfs/comments/1ks3yw3/comment/mtip6q3/
NeonSnake@vantiss @silkabelli.eurosky.social
Thank you, Elle - I was vaguely sure I'd heard "bad" things about it, but wasn't confident enough to answer myself.