Emily Johnson

If you have #SevereME, like me, you are valuable however and whenever you can show up

I’ve hosted monthly support group meetings for Iowa #dysautonomia and #EDS patients for years, it takes a lot, can’t always do it, but everyone is grateful for these spaces no one else provides

Mar 25 at 7:21pmWeb
Show threadEmily Johnson2d ago

Patients, clinicians, researchers, caregivers just need an accessible space to share thoughts and feelings and experiences, get support and resources to improve their lives and communities

It’s low spoons to set up a meeting, and resting lots before/during/after makes it doable