Today is international long COVID awareness day.
Be aware. And let the awareness lead you to action.
Wearing a mask should be simple enough.
Today is international long COVID awareness day.
Be aware. And let the awareness lead you to action.
Wearing a mask should be simple enough.
@rybson I find the campaign pretty confusing and not good at, well, spreading awarness.
I never really looked into long covid, its symptoms or what is it about, other than vaguely knowing it exists.
I went to the site hoping to find and learn something about it, and 5 minutes later I still don't know anything, other than that I should spread awareness about it and wear teal colors.
@Themikina @rybson Long Covid Awareness day is about solidarity. It's here to give people a little push to go out and learn about the illness and to talk about it with others.
Not every resource can offer the desired information for everyone on a silver platter, especially because many people with Long Covid are too ill to create and spread such all-encompassing resources.
If this website wasn't clear enough for you, see it as an incentive to go out and find other resources about the topic. Millions of people have developed Long Covid in the past few years, it's worth it to know more about their experience out of solidarity, especially because the majority is still looking away and staying uninformed.
Like Oscar Wilde said: "The public have an insatiable curiosity to know everything, except what is worth knowing."
Here's an article about what it's like living with LC:
Some very general overviews of LC:
@Themikina @rybson
Here's some info from #MEAction, an advocacy group for both ME/CFS and Long Covid:
https://www.meaction.net/stoprestpace
https://www.meaction.net/long-covid-and-mecfs
Hope this helps!
PS. Long Covid page from the CDC website:

@OctaviaConAmore
copied the alt
Preliminary studies are now showing that nearly half of people with Long COVID are presenting with ME/CFS.
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is triggered by infection in up to 80% of cases. Other viral infections have triggered ME in 10-12% of individuals overall. Other coronaviruses like SARS and MERS have led to even higher rates of ME.
That means we knew this was coming.
We warned our governments that they would face a wave of people with new and worsened chronic illness due to COVID-19 β yet our governmental institutions have failed to adequately prepare for this entirely forseeable crisis. Clinicians were not educated about the post-viral disease, nor about dangers of over-exertion, which has been shown to worsen the health of people with ME.
1/2
@OctaviaConAmore We must mobilize so that people with Long COVID are able to access the best possible management advice from the beginning. We know the harm that has been done to the ME community. Now, let us use our voices to protect others.
Most importantly, people who experience post-exertional malaise or PEM β worsened symptoms after physical and cognitive exertion β should be advised to rest and pace their activity.
Unfortunately, many people with Long COVID are being encouraged to exercise and get back to work.
Take action today!β¨Help spread the word to those with Long COVID to Stop, Rest, and Pace.