Today is international long COVID awareness day.
Be aware. And let the awareness lead you to action.
Wearing a mask should be simple enough.

https://www.longcovidawareness.life/

International Long Covid Awareness

Long Covid Long Covid Awareness Day March 15th #LongCovid #LongCovidAwarenessDay COVID Viral persistence PASC. COVID19 Long Covid awareness ribbon colors grey/teal/black

Long Covid Awareness

@rybson I find the campaign pretty confusing and not good at, well, spreading awarness.

I never really looked into long covid, its symptoms or what is it about, other than vaguely knowing it exists.

I went to the site hoping to find and learn something about it, and 5 minutes later I still don't know anything, other than that I should spread awareness about it and wear teal colors.

@Themikina
Well, you can send feedback to the authors of the campaign, i am sure they would be thankful.
I can tell you about my experience in the meantime then, in a simplified manner.
I, to my knowledge, caught COVID once, after the mask mandates were lifted. Right now, I am too tired to even do basic household tasks, think for a long time without breaks, and cannot leave the house by myself, because of extreme fatigue. It destroyed my life, and destroyed the life of many others, and it will keep destroying more lives, until people start to do something. Like, you know, preventing more infections. By masking.
Clear enough?

@Themikina @rybson Long Covid Awareness day is about solidarity. It's here to give people a little push to go out and learn about the illness and to talk about it with others.

Not every resource can offer the desired information for everyone on a silver platter, especially because many people with Long Covid are too ill to create and spread such all-encompassing resources.

If this website wasn't clear enough for you, see it as an incentive to go out and find other resources about the topic. Millions of people have developed Long Covid in the past few years, it's worth it to know more about their experience out of solidarity, especially because the majority is still looking away and staying uninformed.

Like Oscar Wilde said: "The public have an insatiable curiosity to know everything, except what is worth knowing."

Here's an article about what it's like living with LC:

https://archive.ph/4SCTL

Some very general overviews of LC:

https://www.longcovid.org/awareness/what-is-long-covid

https://recovercovid.org/long-covid

@Themikina @rybson
Here's some info from #MEAction, an advocacy group for both ME/CFS and Long Covid:

https://www.meaction.net/stoprestpace

https://www.meaction.net/long-covid-and-mecfs

Hope this helps!

PS. Long Covid page from the CDC website:

https://www.cdc.gov/long-covid/index.html

#MEcfs #LongCovid #LongCovidAwarenessDay

@ahimsa_pdx @Themikina @rybson do you have this in dark mode? my light sensitivity (from long covid) makes even glancing at this a headache 
@OctaviaConAmore looks like the whole thing is in the alt text, but in case it helps, here is that alt text:

"Preliminary studies are now showing that nearly half of people with Long COVID are presenting with ME/CFS.

Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is triggered by infection in up to 80% of cases. Other viral infections have triggered ME in 10-12% of individuals overall. Other coronaviruses like SARS and MERS have led to even higher rates of ME.

That means we knew this was coming.

We warned our governments that they would face a wave of people with new and worsened chronic illness due to COVID-19 β€” yet our governmental institutions have failed to adequately prepare for this entirely forseeable crisis. Clinicians were not educated about the post-viral disease, nor about dangers of over-exertion, which has been shown to worsen the health of people with ME.

We must mobilize so that people with Long COVID are able to access the best possible management advice from the beginning. We know the harm that has been done to the ME community. Now, let us use our voices to protect others.

Most importantly, people who experience post-exertional malaise or PEM β€” worsened symptoms after physical and cognitive exertion β€” should be advised to rest and pace their activity.

Unfortunately, many people with Long COVID are being encouraged to exercise and get back to work.

Take action today!
Help spread the word to those with Long COVID to Stop, Rest, and Pace."
@HaruEb oh, right, I should have known  thanks, Haru~ 

@OctaviaConAmore
copied the alt

Preliminary studies are now showing that nearly half of people with Long COVID are presenting with ME/CFS.

Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is triggered by infection in up to 80% of cases. Other viral infections have triggered ME in 10-12% of individuals overall. Other coronaviruses like SARS and MERS have led to even higher rates of ME.

That means we knew this was coming.

We warned our governments that they would face a wave of people with new and worsened chronic illness due to COVID-19 β€” yet our governmental institutions have failed to adequately prepare for this entirely forseeable crisis. Clinicians were not educated about the post-viral disease, nor about dangers of over-exertion, which has been shown to worsen the health of people with ME.

1/2

@OctaviaConAmore We must mobilize so that people with Long COVID are able to access the best possible management advice from the beginning. We know the harm that has been done to the ME community. Now, let us use our voices to protect others.

Most importantly, people who experience post-exertional malaise or PEM β€” worsened symptoms after physical and cognitive exertion β€” should be advised to rest and pace their activity.

Unfortunately, many people with Long COVID are being encouraged to exercise and get back to work.

Take action today!
Help spread the word to those with Long COVID to Stop, Rest, and Pace.

@ahimsa_pdx @Themikina @rybson As an introduction, Ed Yong's articles about Long COVID in The Atlantic won him a Pulitzer, so it's a pretty good place to start: well-informed and easy to understand https://www.theatlantic.com/health/archive/2023/07/chronic-fatigue-long-covid-symptoms/674834/
Fatigue Is So Much More Than Being Tired

Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.

The Atlantic