In the past I've mentioned that my wife (of 40 years) suffers from Functional Neurological Disorder.... now in a meeting of two aspects of my private life, my friend's daughter (who is a GP & blogger) has written an excellent guide to FND for those unaware or only vaguely aware, of the condition (which I usually describe as a software problem not a hardware one).

If you're interested in knowing more about FND then I can heartily recommend Charlotte's blog.

#FND #health
https://thehealthandhealingnarrative.com/2026/03/09/what-is-functional-neurological-disorder/

Understanding Functional Neurological Disorder (FND): A Complete Guide

Functional Neurological Disorder (FND) is a common neurological condition — yet many people have never even heard of it. Even more concerning, it is still widely misunderstood. I was reminded of th…

The Health and Healing Narrative

@ChrisMayLA6 @unchartedworlds i wanna be very cautious and respectful in offering my perspective:

im a former microbiology student who did some work in governmental health policy. i advise patients to be on high alert if they receive this dx. in the public health system (not the private one), fnd is a common dx because it saves money. dont test, dont find, dont treat.

fnd is common because public health does not want to find the underlying biomechanisms behind debilitating symptoms, esp in female patients. ive seen patients with cancer, autoimmune diseases, connective tissue diseases, spinal cord injuries, and serious nutritional deficiencies have their access to care taken away because someone gave up, shrugged, and called them functional. once its in your chart, its not coming out.

scientists will go out of their way to find the cellular mechanisms in patients who have been labeled functional. their papers get published and theyre beautiful to read. the researchers advocate for patients and ask physicians to do comprehensive workups instead of settling for "functional".

when i caught up on the latest literature on fnd (by researchers who believe that it is a legitimate disorder), i started to understand why other researchers look down on those authors. im not saying one is right and the other is wrong, just that i have empathy for the cellular biologists now.

please be aware that something very dangerous is going on, bigger than "unexplained symptoms." research teaches you to be curious, public health teaches you to cut costs.

@pastelexuvia @unchartedworlds

Hmmm.... maybe so; but my wife has all had an operation for a shunt to treat one symptom that did some but not much good.... but equally, as you say once the diagnosis was confirmed Neurology were happy to sign us off as there was nothing more they believed they could do (saving money, as you point out)

@ChrisMayLA6 a shunt is a big step. im sorry, that must suck for both of you /: (the ongoing symptoms)

@pastelexuvia

Yes, but it did alleviate one small aspect....so not a complete waste of time

@ChrisMayLA6 cool. if you want any advice, lmk. it is possible to get the dx taken off her chart and reduce the implicit bias that tends to dog patients for the rest of their care.

@pastelexuvia

Interestingly, its helped us because I advocate on her behalf when we interact with the heart service, its given me a ground on which to base my interventions - which has actually worked OK for us