Is autism self-diagnosis valid? Yep. πŸ’œ

Hey all, after reading dozens of research papers, and meta-analyses, and living through it, I made a thing!

I'd love it if you'd check it out! πŸ₯°

https://codeberg.org/alicewatson/asd-self-dx/src/branch/main

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Update: I replaced the header image, now people can complain about the actual research instead of the thumbnail.

Also, before any more guys respond with gatekeepy opinions about my conclusions, try reading the paper first.

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@actuallyautistic #ActuallyAutistic #Autism #ASD #Trans #SelfDiagnosis #SelfDX #SelfDxIsValid #Research #Codeberg

@alice @actuallyautistic self diagnosing autism water's down the term. It becomes meaningless. Also a lot of these tests make "neurotypical" individuals think they might have autism when instead they could just be suffering from something like social anxiety without any mental disorders such as autism.

@moi @actuallyautistic @alice Gatekeeping is far more harmful than the occasional self-misdiagnosis. Eventually, those folks will figure it out and move on, after getting to know autistic people and developing a better understanding of what autism is, or seeing a professional and learning of their mistake. I lived for 13 years as a self-diagnosed autistic person before having the $$ to get a formal dx. Those years would have been way more difficult had I not been welcomed into the community as someone who belonged, considering that I did, in fact, belong.

Nothing is getting watered down or becoming meaningless here.

@hosford42 @moi @actuallyautistic @alice
I first got "diagnosed" by my daughter's boyfriend who has ADHD. My daughter was incredulous as she'd never previously realised my issues (I self-medicated a lot).

I've since gone down something of a rabbit hole including thanks to lovely people here like Alice. I'm definitely towards the left of the "gifted"-"autistic" axis and a lot of my issues may be due to social anxiety and a lifetime of trying to deal with that in high pressure jobs, with subsequent PTSD. It doesn't matter. What does matter is being open an helpful to each other so we can each unpeel whatever issues we do have. I wouldn't have been able to do so without the support of people here (it's not over by any means).

What I'm struggling to say is the ultimate diagnosis is not known to us nor is it relevant initially, and we need help getting there and beyond it. I've also had professional help from a shrink for the past seven years. But she wasn't the one who progressed my understanding; she mainly validated what I'd learned elsewhere and has been very supportive. But, despite "only" having social anxiety, there's a ton of ADHD and autistic stuff I can more than just relate to with my executive dysfunction. We're complex creatures.

Gah, this was harder to get from my noggin onto the page than I thought, and it's gone 2am. Just saying that any potential misdiagnosis I may have made (and may still make) along the way is always just tentative, as it's a learning process.

@davep @moi @actuallyautistic @alice Truth be told, the categories themselves are a lot more "gray" and flexible than would make many of us comfortable. As the doctor who diagnosed me explained it, ASD is really just a model that's used to help us understand the person, not a hard and fast thing. If the model is useful, we use it. If not, we find a better one, assuming there even is one. It's just an approximate matching game, not a definite conclusion. No real human being can be reduced to a simplified model, and no one perfectly aligns with the model, either. Living breathing human beings are just too messy and complicated for that.
@hosford42 Exactly. I scrabbled to sort of convey that with the "complex creatures" bit. @moi @actuallyautistic @alice