Being a caregiver is a challenging role, but when you’re balancing your own chronic illness while caring for a spouse with another rare disease, the challenges intensify. I live with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder that leads to chronic pain and physical limitations, while my husband, Dexter, has Fanconi Anemia (FA), a genetic disorder that makes him susceptible to various cancers and
http://countrygirlgonecity.com/2024/09/25/rare-to-rare-caregiving-for-a-rare-as-a-rare/
#cancer #rare #FanconiAnemia #eds #ehlersdanlossyndrome