🚨Registration deadline is tomorrow (Tuesday, Dec. 5) for this 2-day meeting, held on behalf of the NIH ME/CFS Working Group:
"Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID"
Tuesday, Dec. 12
9:00 am - 5:00 pm Eastern Time
Wednesday, Dec.13
9:05 am to 3:45 pm Eastern Time
Details here:
https://web.cvent.com/event/efc45a4d-bcc1-4832-b537-8905ae828077/summary
Agenda (draft):
#MEcfs #LongCovid #MyalgicEncephaloymyelitis #Research #NIH #MedMastodon
I saw three patient activists (listed as "Lived Experience Speaker") on the agenda - Vox Jo Hsu, Ashanti Daniel, and Chimére Sweeney.
I recognize those names from different events but I think several spoke at the #MEAction demonstration in DC on May 12:
https://millionsmissing.org/dc-protest/
(Quick skim, so I may have missed some names! And I think one speaker was still TBD)
Welcome to the #MillionsMissing Virtual Exhibit On May 12th, #MEAction set up 300 red-draped cots on the Mall beneath the nation’s iconic Washington Monument in demonstration of the millions of people living with myalgic encephalomyelitis - also known as chronic fatigue syndrome or ME/CFS - and Long COVID.
ahimsa