PreorgAug 31, 2023
Had to unfollow the #LongCovid hashtag because I was looking for tips on how to manage my long covid but it's just full of people venting their distress that others aren't wearing masks. Firstly, that's not a good use of your energy, even if you're right. Secondly, I don't think it's reasonable to ask people to mask all the time.
Show threadOmega_Scribet (has moved)Aug 31, 2023

@peopletrees Yes, I find it remarkable that few tips are being posted, compared to X (in the good old days). Pity.
I've learned not all people like tips (I know there is no one-size-fits-all solution), so I've generally become a bit cautious.

What symptoms would you like suggestions for? Perhaps I have a few for you.

Do you have some tips yourself, Preorg?

Me, I'm always open to suggestions from fellow patients, since doctors are incapable of offering significant help.

Show threadPreorgAug 31, 2023
@Omega_Scribet tbh I have a range of management strategies and supplements I take, so the #LongCovidTips I'd be looking for would be new or emerging ideas, or experience of particular supplements like lactoferrin that I haven't tried. But I would also share beginner tips with people if there was space for it.
Show threadOmega_Scribet (has moved)Sep 1, 2023

@peopletrees I'm taking Lactoferrine, 300mg. I've taken up to 900 mg. Free of LPS and 97% purity. Didn't notice any change. When the bottle is empty I'll stop.

Latest I have been trying is stimulating the auricular nerve (Tens), in order to stimulate the Vagus Nerve. (Covid has mostly affected (several of) my nerves).

I have read on X VickyvdTogt has been succesful with getting the right acid-base balance (Low PRAL diet), deap breathing and stretching.
Others were succesful too.

Show threadPreorgSep 1, 2023
@Omega_Scribet Thanks, I didn't know about the acid-base balance research
Show threadOmega_Scribet (has moved)Sep 1, 2023

@peopletrees Good! I am glad I could point into a new direction. 😃
That's why it is so important, I think, to share ideas, the things we have encountered, and the things we have tried. Succesful and unsuccesful. We all want to improve, even if it is just a little bit. 😃

Which supplements, or things, have helped you the most?

#LongCovid
#LongCovidTips

Show threadPreorgSep 1, 2023
@Omega_Scribet Most is probably antihistamines and flushing niacin, both quite widely used among people with #longcovid. I've also felt improvements with nattokinase and serrapeptase. I had definite improvements with LDN but found it difficult to judge how much it genuinely gave me more energy and how much it acted more like a caffeine boost, taking energy from the future. #longcovidtips
Show threadOmega_Scribet (has moved)

@peopletrees Antihistamines helped me big time. Same for benfotiamine, against the internal vibrations in my legs. Salt and potassium were useful against throbbing headaches, but now I am experiencing fierce, stabbing bolts of lightning kind of pains in my head.
I am using NK and SP, dunno if they helped, I think not, but because of the risk of clots I take them.
LDN, I think it helps but progress goes very sloooowly - it definitely helps getting a good sleep. 😃
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#LongCovidTips

Sep 1, 2023 at 7:55pmIceCubesApp
Show threadOmega_Scribet (has moved)Sep 1, 2023

@peopletrees CBD oil (RAW), and THC oil, because of the affected nerves and nerve pain. Enhances sleep as well. 😃
I am getting B12 injections because of long time B12 deficiency, but have upped them after getting infected with Covid and noticing I got many of the same B12-deficiency symptoms once more.

Those are the things that helped me most.

I completely forgot about flushing niacin, thanks for mentioning it. I'll try it one of these days. 🙏

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#LongCovidTips
#LongCovid