DanielI *could* see myself as a difficult patient, or I could see myself as a patient with complex and challenging needs, trying to advocate for myself in a homogeneous medical system that struggles with exceptions and special cases, or overlapping conditions.
I choose to do the latter, and recognise that this will cause the system to experience frustration when their systems don’t work for me, and I’ll be the squeaky wheel that they don’t want to hear from because none of their stock tools work as-is.
And I acknowledge how lucky i am to be treated even with the respect and equity that I am, given so many I know are not. Nobody’s overtly writing me off as hysterical or outright lying to me or gaslighting me to my face. I know that all happens.