Random thought about “person first language”, I think it’s fine if the thing you’re talking about can be removed and the person is the same in all ways that matter as a person. Autism isn’t one of those things though.
A person with pizza, long hair, or even big feet is still the same person if those things are taken from them. You can’t remove autism from an autistic person, it’s part of what makes them the person they are.
I will say one of the best things about realising I’m autistic is I can find advice that actually works and experiences I relate to personally rather than hypothetically.
My whole life whenever I’ve sought advice my reaction to it has been “yeah I can see how that makes sense but I think that’s for other people”, and now I know why. Now I get to find things that actually help *me*!
For example, I’m currently in the middle of a shutdown (a thing I now have a word for!) because after weeks of pushing myself on the jigsaws and then autism research, I had a guy in my flat yesterday making loud noises for over an hour to install a fire door.
I’m still in the habit of trying to push myself to work, I want to keep up momentum on my project, but because I know what I’m going through I allowed myself to go much easier even though I took yesterday off.
I’m still a huge mess lol, but now I am actually developing techniques to avoid burnout! It’s so exciting!
I’m exhausted, but excited and optimistic! It’s wild!
What the fuck, not everyone has visual snow????
Are you fucking kidding me?! Whaaaaaaaaat the hell! 🤯
Anyway my first memory of having visual snow is in second year at school when I told my classmates that I could “see the air”.
Anyway this isn’t an explicitly autistic thing, but it’s apparently it’s pretty common among autistic people and I had no idea there were people who just… don’t see it.
I feel like everyone should ask themselves “could I be autistic?” and taking just a little time to research.
It would solve so many problems:
1. Everyone would understand autism better
2. Fewer autistic people spending years thinking something is wrong with them and not knowing why
3. I stop having to fight the urge to personally tell specific people in my life that maybe they should think about it
But also, the realisation that I’m autistic has been SO GOOD for me and such a huge relief, who wouldn’t want that for people they love?
Anyway, what I’m saying is please normalise the idea that everyone should give the possibility some consideration and that it’s okay whatever conclusion they come to (or whether they decide to even say)
Seriously though, that urge to tell specific people. It’s so strong, especially with family. How the fuck do I even deal with that?
Maybe I just… come out as autistic to them and drop some info to explain it… that also happens to list common traits they might notice? Okay no that feels manipulative that’s definitely not it.
btw if you know me, you’re reading this and thinking it’s about you - trust me it isn’t.
But also, everyone should give it some thought so I’m not going to tell you not to consider it.
Okay, right, I mentioned near the start of the thread that I’d have some thoughts on stims vs tics and I think I’ve figured out what they are.
The TL;DR is, I think they are the same thing with different levels of severity.
Which is to say some things I’d call stims, some I’d call tics, but there is an overlap where they are some degree of both. I think both serve the same purpose (in me at least)
The distinction I’ve found other people say is stims are voluntary, tics are involuntary. I think this probably comes from people with one condition not wanting to step on the toes of another, to stay in their lanes. Which is super fair and admirable, I just think these lanes are reeeeeaaaaallly close and they seem to overlap.
What I’d say about this distinction is voluntary/involuntary is a false binary, things are much more interesting than that!
For tics it’s pretty accepted that if you feel them coming you can suppress them (for a time), otherwise they come out without warning. That already is some variable stuff!
I’ve also heard about stims that if you need to stim you’re going to stim one way or another, even if it’s not super apparent, that’s not clearly voluntary either, you can sim by choice or unconsciously.
Anyway now I’ll jump into my personal tics/stims discovery journey:
A little while after starting antidepressants I noticed myself ticcing, it started fairly simple but progressed to a variety of complex tics including vocal tics. tbh, it had me really worried something was scarily wrong with my brain!
After a while though, I realised I’d always done things like this, but I’d just kept it tapped down and private in a way I couldn’t do anymore.
I sort of learned that in *some* cases, I could redirect a tic into something else, so instead of shouting “fuck” in the GP’s waiting room, I could wave my hand are make little mouth pops.
These could take pressure off the urge to tic until I was somewhere I could do it safely.
I realise now I was less redirecting a tic than stimming to manage the stress that was prompting it.
When I started thinking I could be autistic I allowed myself to stim much more, and something I’ve noticed in the time since is that as a result I’m ticcing A LOT less.
I am definitely still ticcing, but I haven’t had my tics exhaust me for a while now, it used to be every day.
My current theory is that I was unconsciously stimming my whole life, “oh I always ticced but I was keeping it down” nope that was probably stimming.
But when I started the antidepressants, my guess is they did something to change how I regulate, I had no vent for stimulation in my body and it became tics.
Omg I just remembered one of the biggest stims I did as a kid: chewing/sucking my sleeves and collar. I ruined a few of my school jumpers and would often have damp marks from it. I remember my mum telling me to stop, I guess I did?
I feel really nostalgic about it now somehow.
Took out an old hoodie and look, physical evidence!
Imposter syndrome can choke on a shit!
ngl this stim is still S-tier for me.
though I can't explain why most food is disgusting to me but fabric in my mouth is just fine.
since I brought up a ranking, here is my tier list for stims I've rediscovered, were already doing without realising, or tried out just to see:
S: Bite/suck on thick fabric, Shake fists hard
A: Rattle/roll dice, Flap hands, Music, Rain Sounds, Jumping
B: Spin in circles, Rock side to side, Touch thumbs to fingers
C: Sway, Speed cube (sexy move), Pop-it
D: Alternate snapping fingers as fast as possible, Leg bounce, Tap face/head
F/Hell: Shiver, Blink hard, Scratching, Bite skin
Different stims seem to help with different things, and sometimes I recognise I'm starting to stress and haven't been stimming, so I'll have to cycle a few until I pick one that helps (sometimes hitting ones that make it worse on the way D:). It's much easier when the right one just comes unconsciously.
Also there is no E tier, this is partly due to the nature of stims, but mostly due to me not proof-reading ever.
okay, everyone stop,
you can get bracelets to chew on.
chewelry.
CHEWELRY.
This is a fucking game changer.
Game changer?
Wait…
My autism, and all the resources that can help me… they were… !
Learning that not being good at reaching out to friends but still considering them friends even if you don’t get in touch for years is an autistic thing.
It’s wild how much of my personality can just get filed into this one box.
Also makes me feel bad for allistic people tbh, thinking someone isn’t your friend just because they haven’t spoken to you must really suck.
But also I guess if you’re reaching out to friends all the time maybe it’s not an issue? Seems like one of those cases where some neurotypes work well together but others have a bunch of incompatible kinds of communication.
This is probably also why all the D&D games I’ve run fail, when the party misses a couple of weeks I don’t have it in me to arrange a new session.
tbh I enjoy being a player more anyway, so I guess that’s fine.
btw if you’re looking for someone to join your online group… 🙋
I’m just going to say it: I love my autism.
So glad I got all those vaccinations as a kid.
.
.
.
(The second line is a joke, though I am glad for that for unrelated reasons!)
Walked into a supermarket for the first time since lowering my dissociation with my body and almost died.
Okay that is an exaggeration, but it was definitely some kind of fucking assault. Holy shit. Did they design these things to overwhelm literally every sense?
YouTube recommended this to me (presumably because I’ve watched hbomberguy before and will now watch anything with ‘autism’ in the title).
Anyway it’s a really good video that has nothing to do with autism, but does highlight the foundation of the anti-vax movement and WOW I had no idea that it was such a shitshow!
People erroneously say that autistic people can’t feel empathy, which is fucking staggering when you look at the behaviour of Wakefield et al.
Like, it’s not easy to highlight a real person that is unambiguously evil but that right there is a one. If getting vaccinated did shift your brain to be unlike his, then that alone is reason enough to take every single shot possible.
So something I’ve been thinking about lately is autism as a disability, which I’m sure is a topic with no shortage of controversies and I’m still figuring out where it sits with me and where I sit with it, if that makes sense.
Since I began research I’ve been skimming stuff around the social model of disability and it makes A LOT of sense to me…
If it was normal that to walk in to the supermarket you had to solve a sudoku problem I’d not have any issues, but that would severely reduce the effective ability of many others. That’s the essence of the social model of disability as far as I can tell, that society disables.
But also that doesn’t feel *completely* right, because when I have a tic attack, I do feel like it is disabling me. I can’t do what I want, I can’t exist as myself. The tics (unprompted) disable me.
And I know that autism can be like that for some people (and might even be indirectly like that for me, if it is related to my tics or [other issues I’m not ready to look at rn]), it’s a wiiiiiide spectrum after all.
Realising I am autistic has been so liberating for me, but I know it can also be a struggle for people in ways that aren’t just social (but could be improved with social change!), and balancing those two perspectives is… interesting.
A common tendency among autistic people (and everyone else too, by my observation) is to fall for dichotomous thinking, to categorise things in black and white, right and wrong, correct and incorrect.
At first, through this lens, it seems like autism as a disability, autism as wonderful and flawless, the social model of disability - it seems these things can’t all be right… but I think they are. Stuff is just more nuanced and also, out of my experience and learning so far.
Which is all to say: I am autistic, but I’m not comfortable calling my autism a disability personally. But I fully respect those who consider their own autism to be a disability or disabling.
And I think importantly: I can still see the ableism that effects people with autism, myself included. A lot of it has hurt me and disabled me, more than my autism ever did. I’ll fight that when I can, regardless of whether I consider my own autism a disability. ❤️💪
Was thinking about how any time I anthropomorphise something, there is no going back and I will care about it’s feelings forever (sometimes I worry that the moon gets lonely all far away and that everyone forgets to talk to her, so whenever I see her I always say hi.)
Anyway I checked and yep this kind of thing is common with the tism.
… daydreaming is a kind of stim 🤯
Looks like this notion is a little (tho only a little) controversial and not properly researched, but I have noticed since stimming more frequently in meatspace I’ve been dipping into immersive daydreams MUCH less.
I’m pretty confident it’s true though!
In a few autism (well, AuDHD mostly) tiktoks the mostly clean clothes pile is mentioned like it isn't an everyone thing... that can't be right...
wtf do neurotypical people do with clothes they only wear for a chill couple of hours???? Anywhere but the mostly clean pile would be absurd!
Overheard while visiting family "oh I must be tired, my words won't come."
and I'm like 👀
@Sophie I very rarely wear clothes for only a couple of hours? I put them on in the morning, take them off to go to bed. Hooks by the door for jackets and long-sleeve t-shirts for layers as the temperature changes outside, certainly, but I think that's about it for short-term clothing for me...
Hmm, well, short-term events like singing a concert or something, but I haven't done that in over three years...
@Sophie Ohhh, this is interesting. I do a thing I like to call "going inside my own head for a while".
It's almost like going into some kind of standby mode while my brain plays out random scenarios or fanfiction versions of movies/games or whatever.
I've never considered it as a form of stimming until now.
Sophie 🎲🏳️⚧️
Josh Grams
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ferunando
I’m Tired And Everything Hurts
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Esme Povirk