So yeah, expect toots from me on this topic as I figure things out personally. Like I’ve had a lot of thoughts on where stims and tics meet/overlap and I expect it’s going to take me a while longer to know what the fuck is up with that, especially since I’ve heard personal descriptions of both that are fucking IDENTICAL.

Also given I’ll be tooting about the topic, I feel I better add a disclaimer to my bio that the puzzle piece in my username is unrelated…

… I mean, it’s completely related since it’s my current special interest, but it’s not related in THAT way.

So I saw a couple of things about how autistic folk who have been masking without realising for a very long time tend to dissociate a lot from their bodies to cope with overwhelming sensory information, and that it can be beneficial to consciously try to listen to your body more, a little at a time.

Anyway I’m rediscovering all kinds of sensations and it’s A LOT. I guess I shouldn’t be surprised but yeah, it’s no wonder I had to switch off to cope. A middle ground would be nice.

Examples:
- I haven’t shaved my legs for a little bit, they feel like sandpaper against each other
- I feel like I’m noticing every bump and motion in the building, when a neighbour moves around I worry the floor will collapse
- The carpet feels like scratching on my eyes if I look too long
- Some lights are just too bright, I have to cover my eyes to be in the room
- Water on your hands, not the wetness necessary, but the change in temperature, it starts to feel like freezing ice
There’s a lot of other things too, and it can feel like I’m aware of it all at once. “Listening to your body” seems more like a “floodgates opening” thing than a “try a bit at a time” thing.
I guess I’m glad I gave it a shot though, by experiencing it presently and knowing what I do now, it means I can recognise all the things I did without realising to cope with it. I can make actual choices about which I want to keep up, whether they are worth it, what other options might be, and maybe I’ll find times I can turn off the numbing and enjoy it.
I probably should try to find ways to make my sensory experience a little easier I guess, even if I’m dissociating and ignoring my senses, it doesn’t mean they aren’t still screaming.

Um, holy fuck, it seems like most of my childhood memories are linked to senses? I just remembered SO MUCH about my first year of primary school! I was feeling chilled so I tried to imagine a time when I was warmer, cue a memory of summer in the playground and then a flood of connected memories came!

Bonus: the memory of being warm helped! I don’t really understand but maybe my memory isn’t as bad as I thought, I just don’t know how to use it?

Anyway, we had frogs! They were so cute! I cried when the last one was released into the school pond because it was my friend (one that was perfect, because we were always on opposite sides of glass lol)

Just so many things clicking into place, like “how come everyone else can look forward on a bright sunny day and I can’t?” There’s hundreds of little things like that and suddenly I have an answer for all of them.

It’s simultaneously like I’m knowing myself better than ever, but at the same time it’s so huge a change in perspective of myself I feel like I have no idea who I am. There’s maybe some version of me that can know who they are in the world? That’s wild and scary.

Learned that sympathy and empathy are not the same thing and I’ve only kind-of been performing one and feeling the other. Which is like, okay sure, yes it’s mind blowing but add it to the list or whatever.

What is not okay are that one place’s definition of one matches others’ definition of the other and vice versa. And then there is affective empathy vs cognitive empathy and all the terms and definitions are just put in a blender.

Fucking standardise your shit, society!

tbh I think this is probably something that just isn’t understood properly anyway, since my emotional experience is hard to map exactly to any of the definitions I find.

Like, I think sympathy is something I perform as an immediate response to stuff, but it turns into deep empathy given time and thought? It takes less time if it’s something I’ve experienced before (first hand or with someone close).

When someone says something rough and others are like “I feel bad for you” I’m usually at “I don’t understand yet but I want you to know I care about you so I’ll say I feel bad for you because that’s what people who care do.”

My main feelings at the time are ones of distance and sadness at the distance- that someone I care about is out of reach and I can’t understand or help them.

Plus the usual “wait fuck what is this some new social test? Quick, act like a human, how would a human act right now?”

Also of course there are a bunch of times I don’t react at all because I don’t even realise a problem has been presented until way later. And then I spend a long time wondering if I am supposed to go back to the person to talk about it or if that is weird.
There was a time my mum told me that she very nearly had an abortion when she was pregnant with me, but it was a little euphemistic so I didn’t notice until on my own hours later and had to figure out how to talk to her about it to say it was okay and she didn’t have to feel bad about it. That is maybe another story but the point is she was unloading a huge emotional burden she’d been carrying and it was just so alien to me I didn’t even notice at the time.

Fucking hell recalling this kind of story and it sounds like such cliché autistic stuff. It’s fucking wild how I’m only now realising it.

If I’d ever just taken five minutes to examine my life with a “Autistic maybe?” lens I’d have figured it out in no time. 🙃

Just want to take a moment to say how validating it is to hear other autistic people talk about their experiences. So many little parts of myself and my life I thought were wrong, but it turns out they are just different to what was around me (and are shared with a whole lot of people after all!)

It lets me really feel like I don’t have to be so sheepish about my quirks.

“Why don’t you like beans on toast?”
BECAUSE BEANS ARE FUCKING WET AND TOAST IS FUCKING DRY. WHAT KIND OF MONSTER ARE YOU TO THINK THEY ARE SUPPOSED TO TOUCH IN ANY PLACE BUT MY TUMMY?!

I mean, I’ll probably not be quite so harsh lol, but there’s a new confidence in myself I never had ❤️

But yeah seriously, every time someone talks about how they have focused so much on trying to seem like they are paying attention as a normal person that they didn’t notice what was being said, I feel so connected and real.

And then the shame of feeling like you’re lying by smiling and nodding as if you understand? Ugh I’m just not going to sweat it anymore. I’ll listen my way or not at all. 💪

Okay so here’a a story. When I was a kid, I was a “picky eater” - something that was not especially indulged by my parents at the time. They took the stance that I’d simply learn to eat properly or go hungry, but when faced with food that grossed me out I would always choose staying hungry. I developed extensive techniques to avoid food to accomplish this!

First of all, meals at home: I was expected to clear the plate, and wasn’t allowed to leave my seat until I did. I would spend literal hours poking at peas with a fork (genuinely doing my best to try and make myself eat, but you can’t do what you can’t do).

My parents did not have the patience to oversee me for that kind of time, so when they left the room I’d sneak little bits off my plate and into the bin. I did it gradually because I was a cunning kid!

Sometimes I’d get caught and yelled at or worse, but I kept doing it for any meal I couldn’t stomach. For the most part I just got really good at wasting meals my mum cooked. (Sorry mum!)

But that’s not the interesting part of the story, see my mum also made my packed lunches, so I had complete adventures disposing of sandwiches I didn’t like.

At first, I used the bin at school. This worked for a while but I think a teacher found them a couple of times and started looking out for who was doing it, so my parents found out. From then on I had to bring home evidence that I’d eaten the sandwiches: a display of my lunchbox including the used cling film. Easy to do but there was no bin between my house and school, but there were people’s gardens, bushes, flower beds, the woods.

I left uneaten sandwiches EVERYWHERE!

Buuuut after a while I started feeling guilty, plus it felt like such a big risk. If anyone started to talk about sandwiches appearing everywhere then my parents would know it was me, I had to do something else.

So I started unwrapping my sandwiches and hiding them under my bed.

Look in my defence I was a child, I didn’t know what would happen, just that they were hidden.

So obviously my bedroom starts to smell, my mum decides to clean it and finds a pile of mouldy food under the bed.

From then on, I had to have one of the school dinner ladies watch me eat during the lunch break. But I still couldn’t make myself eat things I didn’t want to, eventually they got tired of spending the whole break waiting for me to eat something I wasn’t going to eat, I went back to binning sandwiches I didn’t like, and everyone just kind of accepted it I guess.

Anyway the point of the story is that I went to absurd lengths to seem like the person everyone wanted me to be, and even though I knew I couldn’t do what they wanted it still never occurred to me that I couldn’t become that person either. Getting a good perspective on yourself is surprisingly difficult, but tbh I’m proud of that hungry little food-stashing kid burying sandwiches under some roses. They struggled but figured out a way to get by.

So I’m watching a lot of autistic tiktok compilations now because they are free piles of human connectivity just for me, but there is a problem.

In a few there is something I’d describe as a sort of autistic expressiveness. It’s super authentic, sincere, unreserved, and even joyful, in a way that is very clearly NOT neurotypical - and I have a bad reaction to seeing it. I feel so uncomfortable, “😱 oh no, you’re not supposed to be like that!”

My reaction is clearly some internalised unpleasantness that I didn’t know I had. It probably played a big part in me not realising I was autistic by making me averse to something so beautiful that I wasn’t allowed.

I thought I’d unlearned the “be normal” rule years ago but there’s still a lot of work to do.

Just to say it and be clear, I don’t like seeing autism as a disorder rather than just a different neurotype.

And frankly, it’s really bizarre that it is treated like a miserable condition by neurotypical people who will get tired of their favourite song if they listen to it on a loop for too long. 😛

I’m still figuring some things out and I’ll probably stumble along the way but I don’t think those opinions are likely to change. (Neurodiversity is good and the social model of disability sounds cool, and also that it’s sad and fucked up that some people get tired of things they really enjoy)
Really glad I started this thread with the recommendation that you mute it if I’m posting too much because wow stuff keeps occurring to me, here’s another!
I used to get told *a lot* that I lack “common sense”, which usually meant that I didn’t know what people wanted from me. Anytime I’d get asked to do something new I’d have to ask for various clarifications until I thought I understood exactly what was being asked. And then later when I did do exactly what was asked, the person was often annoyed because there was some implied thing that I should have done in addition.

Simple example: “Please fill the kettle.”
“How much?”
“A cup for each of us grown-ups.”
*task is performed, and then later;*
“Why didn’t you turn the kettle on?”

You didn’t say to do that! Besides surely if you wanted it boiled immediately you’d have said “boil water” not “fill the kettle”!

I’m not exactly like this now, but only because I have a lifetime of stumbling into this kind of thing. For anything new though, it’s going to happen still.

I definitely had a few bosses get exasperated with me about this, at first thinking I was just lazy and then becoming super annoyed when they realised I needed some stuff explained to me step-by-step.
tbh I still don’t understand how it’s supposed to work if you’re not giving exact instructions - you’ll never get exactly what you want!
Maybe this is part of why I actually appreciate legalese as much as I do, sure there are still things unsaid and things between the lines, but they stand out much more to me because of the sort of negative space they take up. If that makes any sense at all?
Quick sensory exploration/reassociasion(?) update:
- I got some noise-cancelling earbuds today, they definitely make some background noises less sharp, but they help nothing for sudden sounds which are my biggest shock. Better than nothing though!
- I have a patch of dry skin on the back of my shoulder rn and it feels SO AWKWARD as my vest moves over it! I’m finding I can open up my senses pretty quickly but shutting them off again is sloooooooow, deliberate dissociation is tough :(
- I tried opening up to listen to the cars and all the birds on the street. It was… kind of cool? Some engines were very unpleasant as they passed and I had to recoil, but I started to be able to distinguish different types of engines and even noticed one car had a high frequency rattle hidden in its brum, it probably needs checking but I can’t catch up to a car to let the driver know lol.

Overall, it’s definitely a lot, and I am very aware that when I’m actually listening to my body I look pretty uh… well, let’s just say it’s not something you get in the habit of doing when you’re masking.

However, alongside the rougher parts there was really beautiful stuff too, there were little spots of rain that looked like diamonds as they hit the concrete just before fading. I’m glad I’m rediscovering my senses.

An addendum though: hypersensitivity issues are often associated with autism, but many autistic people have no sensory issues, or hyposensitivity.

This is stuff in my autism thread, but that’s because it’s *my* autism thread. Autistic traits and experiences are diverse!

Also I don’t want to lend weight to the “autism is a superpower” idea some people have, I’m sure with focus most people could notice what I can, probably without the discomfort.

Just been told that mastodon doesn’t have a thread muting feature yet, so I’m switching to a collapsed CW so at least the posts are shorter.

tbh I don’t think most of what I’m talking about needs a CW but I this is probably just most convenient for now

Every sense itches this morning, it’s super overwhelming and I don’t know how to turn it back off. If I touch something I don’t like it feels like the sensation is stuck to my skin for a while afterwards.

How the fuck did I deal with this when I was just a child??? It’s no wonder I was so hesitant and reserved about everything.

I am still glad I tried to open back up and listen to what my body is saying, since I understand myself a lot better, but also BITCH, SHUT UP.

“Oh, being non-verbal is a super rare thing for me personally, it’s only when I’m beyond stressed and overwhelmed that I can’t talk at all”

Then part-way into this video I see every discarded patron video and every moment where I’ve had to bail out of a stream.

Anyway really informative!

https://youtu.be/V3iqUAo0IeQ

“How the fuck did I deal with this when I was just a child?”

The instinct came back and I remembered - I lie in bed with my head between two pillows for a long time.

So I was going to post about my frustration at myself for masking as soon as I spoke to someone immediately after deciding not to do that, but then I thought about it for a while and I think I only did it to make them comfortable. which is fine so long as it’s not making me uncomfortable.

Then I realised that’s just… what I’ve been doing for a few years now anyway? Weird to think you’ve got shit to figure out but it’s already done.

I guess there is still a subtle change, to know that it’s okay to allow myself to deviate from the Standard Human Script if I feel comfortable doing it. Before I stuck to it because I thought I was supposed to, now I guess I’ll do it just because I want to make interactions with me easier for other people.
As for what I look like when not masking, rn it involves a loooot of stims. I think a fair amount of them are tics mimicking stims of others, buuuuuut I know some are mine when they hit just right and it’s like, ice cream as a motion? If that makes sense?
Sensory perception is so fucking weird, I was just thinking “holy shit did a bug bite me, or did I rub against some nettles?” - nope, it was just a clothes label. I don’t think a label has bothered me for a long time, and this label has never bothered me. But now my body is all “oh you’re listening now? Let me tell you all about my constant agony.”
Genuinely thought I didn’t practice facial expressions, but I just caught myself doing it and realised it’s not that uncommon at all. I wonder how much about myself I’m still totally oblivious about because it’s just been there in the background for so long.

There’s a pretty overwhelming thought about how I’ve noticed myself mimicking behaviours of autistic people that I’ve seen since so saturating my time with research.

It triggers imposter syndrome where I wonder if I’m not autistic, I just have this habit of copying people’s behaviour and adopting it without thinking.

Then I realise that’s like, autistic.

Which is really awkward when thinking about my identity, I don’t know what behaviour is my own? Most of the new stuff is likely just copied, but also most of the old stuff is too?

I guess that’s true for everyone to some degree though, right? I guess the behaviour that is “mine” is whichever is comfortable for me, regardless of where it comes from?

WRT the “that’s like, autistic.” above,

Specifically that’s a masking trait, one I think I developed to do unconsciously as a defence mechanism. I don’t expect it’s an especially autistic thing, rather that it was inevitable for me being autistic in a certain environment.

(Again, this is *my* autism thread so not everything will be universally applicable.)

I’d be surprised if I were alone in it though, given that the environment I grew up in wasn’t exactly unique.
Okay so why is it autistic to see patterns in things and get overwhelmed by unexpected changes… but it’s neurotypical people who immediately notice when someone gets a haircut?
So I think I’ve finally cracked my personality and the root of all my trauma!
- Terrifying dad who will yell and be violent with little warning, which is bad enough but add hypersensitivity and every time he becomes angry is a potential meltdown
- First lesson in my life is “do not agitate this scary being”
- He cared A LOT what others thought of him, and got mad more if I wasn’t exemplary in public
- Social anxiety!

It’s fucked up how much that very early shit wired how I approach everything. My very first nightmares were just the sound of him shouting. No monsters, no violence, just a noise that is really loud and scary. Of course I default to trying to be what people want me to be, and mimicking behaviour to fit in, and still have the worry that things will go bad if I make a slight mistake or misunderstanding.

Fuck, what an asshole!

Partially related, I remember at the end of primary school, I showed him my exam results with a bunch of fear.
“What does average mean?”
“It means normal”

I immediately smiled and felt so relieved, my dad said I was normal! Mission accomplished! …but then he continued.

“That’s not good enough.”

Apparently I had to be the best. So for secondary school I managed to get in the top class for every subject and was wound so tight I burned out. Thanks dad.

Anyway jokes on him, loser died slow and miserable. I mean he *really* suffered. Cancer is cruel and nobody deserves it, except for him because he fucking deserved it.

And now just a toot to change the topic and lose the extra CWs!

Happy stimming! Happy stimming is the best! It’s so fucked up that I held that shit in for so long because it is great to be happy and to feel the happiness in your body!

Random thought about “person first language”, I think it’s fine if the thing you’re talking about can be removed and the person is the same in all ways that matter as a person. Autism isn’t one of those things though.

A person with pizza, long hair, or even big feet is still the same person if those things are taken from them. You can’t remove autism from an autistic person, it’s part of what makes them the person they are.

@Sophie today i learned: visual stimming is a thing. it might explain my fixation with slowly blinking lights, swinging objects and progress bars 😅
@Sophie Jesus wept. If my kids come out of primary school with smiles on their faces I’ll call that a win. Fuck the SATs.
@Sophie that's so fucking rough, he sounds like such an asshole. I'm sorry you had to go through that
@Sophie probably because faces are such an overwhelming amount of stimulus that many autistic people avoid looking at or studying them
@clarity @Sophie that might be most of it, yes. i notice *something* is different, but if it isn't one of my people i just give up trying to figure out what it is; someone will find out and point it out 🤷 but if it's one of my people, ones i feel comfortable looking at for a longer duration, eventually i find out what i think is the difference and then i say "you look good today" and they tell me what they changed and 8/10 it's not what i though was different 😅

@Sophie I was afraid to notice. Having been told I was scary—presenting as a tall, excitable, overweight dude—I was even more afraid to say anything, as the last thing I ever wanted to be told was that I'm creepy. 😰

I'm always thrown for a loop when someone compliments my appearance. I'm never expecting it. 😵‍💫

@mike yeah physical complements never made sense to me, for me they are just for other people’s benefit (regardless of if it’s me complementing them, or them complementing me), and I only ever give them on super rare occasions where I’m confident they won’t miss.
@Sophie for a long time i've been wondering why i crave *controlled change* --like expending hours just mining the same 3 nodes in final fantasy xiv-- and abhor *surprises* --frigging jump scares should disappear from media-- and coming back here now made me realize that the reason might be this deep thirst for patterns. controlled changes lets you see the pattern emerge and the confirmation that it changed how you predicted... sweet joy 😊
@Sophie Really hard to sort out in general what is an autistic trait and what is a result of the way autistic folks are treated.
@Sophie Come to think of it, the same behavior could also be both.
@madewokherd @Sophie inherent versus extrinsic autistic traits? 🤷
@Sophie I've been stuck in that loop for 3 years...
@Sophie I just want to know if I constantly felt ghost vibrations before cell phones trained me to pay attention.
@attoparsec depends on the vibration I think, I’ve noticed some devices have a tiiiiiiiny tingle feeling if you touch them when they are charging, but otherwise I only notice little vibes if they are doing a lot of work (and getting warm) or are making sound

@Sophie

...huh. You may just have explained A Thing I Do for me.... 🤔

@Sophie Same. Also, my wardrobe was built into the wall and I used to sit in there a lot.
@guffo @Sophie I used to hide in the lower part of my house's airing cupboard when I needed to be away from activity
@Sophie for me it's particularly crippling turning non-verbal, as i have a particularly strong fixation with being correctly understood when expressing myself. get too overwhelmed to think about what to talk and i fell like non-verbality is even more prone to misunderstandings, makes me more overwhelmed, then i just... lock 😅 in good days i walk away from the interaction at this point, but in bad days, i physically lock in place 😅

@gureito I’ve definitely been there 🫂

I am pretty lucky that the person I talk to most (my mum) can usually guess what I am trying to say, but it can get really frustrating when she keeps trying and I’m like “no, no, no, no, still no” (without actually *saying* no) that makes me want to express more urgently, which only makes it harder lol

@Sophie It sounds like your hypersensitivity is stronger than ours (well, Kaedyn's), but we like looking at trees.