Nikki MassaroSandwich generation #spoonie problems: Overcoming your own shitty doctors to get proper treatment only to have to fight the battle all over and over again for a parent and a child.
H. James@nikkimk It’s hell :( Sorry if you’re going through it. Simultaneously fighting for better care for my two kids and myself. The shoulder shrug and “come back if it gets worse” is exhausting.
@hjames thanks. The uphill battle of educating doctors about my family’s #perniciousAnemia has been a lot.
@nikkimk pretty ridiculous since that is a well known diagnosis with a clear etiology and genetic component 🤦♀️ Best of luck in finding a better healthcare team 💛
@hjames the battle with my mom’s provider is that they don’t understand that testing someone right after a shot is not an accurate measurement of what gets absorbed. She apparently went to an appointment after me, 36 hours post injection and so now they are telling her her number is too high. smh.