While I’m glad mastodon (especially #MedMastodon and #DisabilityMastodon ) exists, this piece by @ImaniBarbarin outlines exactly what I and many other disabled and chronically ill people feel about the end of Twitter. The platform has been our best or only connection to the rest of our community; a place of invaluable knowledge, support, and advocacy.

https://crutchesandspice.com/2022/11/16/with-twitter-crumbling-it-feels-like-the-world-is-collapsing-on-disabled-people/

With Twitter Crumbling, It Feels Like The World Is Collapsing On Disabled People

I don’t want to leave the platform and I feel like I am mourning it in real time.

Crutches and Spice

@kburnard @ImaniBarbarin Hopefully the ol' Elephant site can provide at least some of that quality that the bird site provided, perhaps even with a bit less of the inbuilt toxicity that plagues the bird site.

The question I guess is can the fediverse be as effective for advocacy purposes :(

@shayneoneill @kburnard @ImaniBarbarin as far as finding community and getting support WRT disability and chronic illness, I've found fedi to be far superior to Twitter!
I don't think it's going to be that effective influencing mainstream ableds--but was disability Twitter, really? I was never under the impression that a single abled person gave a shit what I was saying there WRT disability, accessibility, or my needs, unless to dunk on me for being disabled
@raphaelmorgan @kburnard @ImaniBarbarin yeah true the culture is definately better here, but I do worry about outreach. Was talking about mastodon with a friend who has significant invisible disability , and gets rather lonely as a result, she had never heard of mastodon. (Hopefully she'll sign up but she's not super tech skilled so I might have to help her out with it. ) but I worry about those without friendly geek neighbors.
@shayneoneill I think as far as new people goes, it's not necessarily much harder than other social media sites if they're invited to a certain instance and told it's like email.
they just have to sign up like they would to Twitter; it's not fully accessible but it's no less accessible than mainstream options if they're provided a link to a specific server. Hell, I don't know half of what people are talking about here with technology, I hardly know how to use a computer 😅

@kburnard @ImaniBarbarin

That's a good piece and, frankly, I had not thought much about how people depended on their Twitter communities. Thanks for your perspective.

And I understand how difficult it is to consider re-building a community on a new platform. But I've seen a lot of disabled people here -- a lot of them new -- so your community is here. Hashtags really are the key to navigation here since there is no algorithm. And maybe your friends on T will come here.

Good luck.

@kburnard @ImaniBarbarin

It's time for a consortium of media outlets and stars to pony up some bucks every month to add to the paid devs. Treat Mastodon like Linux.

@kburnard @ImaniBarbarin interesting. Tiktok is where I have found an amazing community for type 1 diabetes.
@kburnard @ImaniBarbarin It's very sad indeed. Twitter was my #lifeline for many years, but it degraded over the last few. I'm glad there's still a place for us.
@kburnard @ImaniBarbarin
Trending hashtags might be annoying sometimes, but they can be helpful to advocacy. I think
#MillionsMissing for example has been helped by Twitter, both in connecting Is to each other, and in raising the voices of #pwme
I think it's been for several groups who can't usually be heard (and/or are barely heard anyway, but at least find each other).