I’m thrilled to share that #MadameNoire has published a #necrotizingenterocolitis piece I worked on in collaboration with the #NationalBirthEquityCollaboration’s Susan Perez & Afua Nyame-Mireku!

The article discusses surviving #necrotizing enterocolitis, understanding my mom’s experience with the healthcare system as I began to navigate it myself as a #Black female #raredisease patient, and NEC’s disproportionate impact on Black infants.

#blackmastodon #equity #health

https://madamenoire.com/1327729/nec-neonatal-illness/

SUNDAY NOIRE: I Came Into This World Fighting To Stay Alive

Despite the disease disproportionately affecting Black infants, the leaders in the NEC community are overwhelmingly white.

MadameNoire