It's great to see such a huge turnout for this past weekend's No Kings Rally. However, at the end of the #weekend, a friend (who works in healthcare) asked me which rally I went to. I told him I didn't attend any due to caregiving responsibilities. He asked what was so difficult about bringing our son to a rally.

So...I want to talk about #caregiving for a bit. I've mentioned here before my son is fully #disabled with severe spastic #quadriplegic cerebral palsy, is #actuallyautistic, and has significant #sensory #needs. Caregiving is physically and emotionally #brutal. It's a significant #life change that, unfortunately, a lot of #people simple do not and cannot fathom - unless it happens to them.

The best way I can describe *my* #experience is it's real time #multivariable #calculus with known, unknown, and constantly changing variables. It requires high level non-linear systems-based thinking to solve #problems, #chaos #management, and constantly being on high alert.

#Burnout is inevitable, the #physical and #emotional #labor is genuinely exhausting on a cellular level, and #time and #access to self care is rare. It's also incredibly #socially #isolating.

In addition to the #social #isolation, navigating the outside world isn't just unnecessarily difficult it's a #failure of the #system. The uncomfortable #reality is most places are NOT #accessible, including #bathrooms. #Toileting is a basic #human #right! My son is too large and heavy for the baby changing stations in "#family #restrooms." We need to put him on a #dirty bathroom floor in order to change his #diaper. Where is the #humanity and #dignity in *that*?

I feel like a broken record explaining this to him for the past six years. It's honestly mind blowing and exhausting.

#parenting #disability #autism #support #nokings #rally

A random artwork from my gallery:

"Stan" — 2020

Lockdown doesn't bother Self-Isolating Stan, he has friends on the internet.

https://johnconway.art/stan

#Art #Coronovirus #Faces #Isolating #Lockdown #OldAndUgly #Paintings #People #Portraits #Ronavirus

Stan by John Conway

A TV critic’s take on the Apple Vision Pro

Why does something that looks so good feel so bad?
...
That was wild enough, but later, when I tried shooting the twins in 3D and played the video back in “immersive” mode — which basically wraps you in the scene you filmed — I realized I was looking at a future superweapon

https://www.washingtonpost.com/entertainment/tv/2024/05/01/apple-vision-pro-ar-vr-headset-review

#Apple #VisionPro #3D #VR #VirtualReality #immersive #isolating

A TV critic’s take on the Apple Vision Pro

With the Apple Vision Pro, everything is magnified, feelings included. And you’re alone.

The Washington Post

From passive #avoidance or low key #isolating, even when in #relationships, to only feeling #safe alone or with #pets or #kids, Complex #PTSD (#CPTSD) can impact how we regulate ourselves and #triggers, how people #trigger us, and how our inner and outer #critic can sabotage #connection, #vulnerability and relationships with ourselves and others.

https://www.youtube.com/watch?v=COEoKE1GeNE

COMPLEX PTSD (CPTSD) AND WHY WE ISOLATE

YouTube

Well, I went 3 years and 8 months after having a #cold or #flu late December 2019 / early January 2020. Since the outbreak probably came through LAX near where I work, it was probably early #COVID-19 and it was horrible, with carry-on symptoms lasting almost a month.

Last week, I needed to attend a tech conference in Las Vegas for work. I saw masks a total of 5 times, besides my own. I aways wore my mask, but then there was this young guy in a black baseball cap, coughing and hacking in a gift shop, sounding almost like whooping cough, not masking, not even covering his mouth. Just shopping with his female friend without a care.

/You know who you are./

#DeleteImageAltText: A positive COVID-19 test.

Is it too much to ask that you wear a mask when you are sick and have to go out of the house? Everyone is Asia does this...

Even a KN95 mask with a good seal can't keep that kind of dose of virus out, however.

#covid #isolating #mask #masking #maskup #covid19 #Paxlovid

Juuuust great. I thought I was over the covid and ready to go back to the office, but I have a 99.5 f fever right now. It's low, but still a fever. #isolating #COVID
Hispanic Federation’s queer president condemns Don’t Say Gay laws: ‘All you’re doing is isolating children’

The Hispanic Federation's first queer president on why anti-LGBTQ+ policies hurt the 'most vulnerable in society' and queer Latinx people.

PinkNews | Latest lesbian, gay, bi and trans news | LGBTQ+ news

Hey, @CNN! #Stop #promoting the #racist trope and use of the word #marijuana. Unless you’re speaking in #Spanish, your promotion of the word continues to associate the #medicine with the #racist history that threatens to undermine our #democracy today.

Tell your #journalists and #writers to get over themselves and stop #isolating & #insulting us.

Recreational marijuana use: CNN medical analyst urges caution | CNN

https://www.cnn.com/2023/04/20/health/marijuana-addiction-wellness/index.html