My notes on the Rare Minds workshop at NSPKU 2024 which discussed PKU and mental wellbeing. This workshop grew out of the amazing response to the Starting the Conversation workshop at ESPKU 2023.
#LivingWithPKU #RareDisease #PKU #LowProtein #NSPKU2024 #ESPKU2023 #PKUCommunity #MentalHealth
What is Large Neutral Amino Acid (LNAA) treatment?
#LNAA is an additional treatment for #PKU which is used in certain European nations.
In my book, "Living with PKU," I discussed LNAA and you'll find an excerpt on my blog:
https://buff.ly/408pMWC
What is Large Neutral Amino Acid (LNAA) treatment?
this is an additional treatment for #PKU [https://pkutalk.com/tags/PKU] which is
used in certain European nations. In my book, "Living with PKU," I discussed
LNAA and you'll find an excerpt on my blog:
https://pigpen.page/what-is-lnaa/ [https://pigpen.page/what-is-lnaa/]
#LivingWithPKU [https://pkutalk.com/tags/LivingWithPKU] #NSPKU2023
[https://pkutalk.com/tags/NSPKU2023] #ESPKU2023
[https://pkutalk.com/tags/ESPKU2023] #LowProtein
[https://pkutalk.com/tags/LowProtein]
What is Large Neutral Amino Acid (LNAA) treatment?
this is an additional treatment for #PKU which is used in certain European nations. In my book, "Living with PKU," I discussed LNAA and you'll find an excerpt on my blog:
https://pigpen.page/what-is-lnaa/
Here is some of the posters at the ESPKU conference by dietitians:
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
Wish I could have been at #ESPKU2023 this year, especially being so close in Birmingham! However, I'm a bit too pregnant for adventures at the moment (34 weeks) 😂😍
Thank you for everyone who went for the updates! I bet it was awesome 😍😍💖
poconnor
Soheb
Aybara19
Clair W