The registration for the E.S.PKU conference 2025 in Hamburg is open! Who else is planning to go? (@soheb or @poconnor maybe?)
The registration for the E.S.PKU conference 2025 in Hamburg is open! Who else is planning to go? (@soheb or @poconnor maybe?)
The January PigPen newsletter is out - and the 🆕 format is so good that MailChimp sent it twice!
🤦♀️ Apologies all - but it does include:
📣 an update on our #ESPKU Workshop, #StartingTheConversation
➡️ #Curated articles on #PKU & #BrainInjury
💡 #free writing course
🚨 Last chance for a discount on #LivingWithMildBrainInjury
https://mailchi.mp/26905a51f8d6/january-at-pigpen-pku-brain-injury
"Best session at any conference, ever!"
Many thanks to all who attended our session @ESPKU conference . Our interactive workshop on the older adult patient experience: "Starting the Conversation: a panel for adults with PKU, by adults with PKU." was a hit!
Couldn't have done it without @soheb @GirlGreenDress @NSPKU
Will have data results asap
Here is some of the posters at the ESPKU conference by dietitians:
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
And that’s the ESPKU done! I had such a great time!
Many thanks to @Chloeormerod @poconnor @skat plus others for chatting with me and making the event that much more better!
I also have pictures of the slides of the latest drugs that, once I’m back home, I’ll make some online album and share the album for folks who couldn’t attend to see 👍 ( @ClairTheGinger )
The ESPKU cake has been lit!!!