The registration for the E.S.PKU conference 2025 in Hamburg is open! Who else is planning to go? (@soheb or @poconnor maybe?)

https://www.espku.org/conferences/e-s-pku-conference-2025/

#pku #espku #digpku #phenylketonuria

E.S.PKU Conference 2025 | E.S.PKU

The January PigPen newsletter is out - and the 🆕 format is so good that MailChimp sent it twice!

🤦‍♀️ Apologies all - but it does include:

📣 an update on our #ESPKU Workshop, #StartingTheConversation

➡️ #Curated articles on #PKU & #BrainInjury

💡 #free writing course

🚨 Last chance for a discount on #LivingWithMildBrainInjury

https://mailchi.mp/26905a51f8d6/january-at-pigpen-pku-brain-injury

500: We've Run Into An Issue | Mailchimp

Bring on the weekend! Lots of #PKU samples to play with after #ESPKU at the weekend.

Anyone got anything they will be trying out? I'm thinking cookies to help me survive the rugby tomorrow.

But first, walkies!

"Best session at any conference, ever!"

Many thanks to all who attended our session @ESPKU conference . Our interactive workshop on the older adult patient experience: "Starting the Conversation: a panel for adults with PKU, by adults with PKU." was a hit!

Couldn't have done it without @soheb @GirlGreenDress @NSPKU
Will have data results asap

#LivingWithPKU #ESPKU

Here is some of the posters at the ESPKU conference by dietitians:

https://photos.app.goo.gl/3sWCoMigivavdvmo7

#ESPKU2023 #ESPKU #NSPKU #NSPKU2023

ESPKU Dietitian Posters

23 new items · Album by Soheb

Google Photos

I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵

These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.

#ESPKU2023 #ESPKU #NSPKU #NSPKU2023

Me, at the ESPKU conference: literally wolfing down every single item.

Me, at home: yeah those two waffles will do.

#ESPKU #NSPKU #PKU

Back home from the #ESPKU conference and I think someone might have missed us a little bit. We had a fantastic time though

And that’s the ESPKU done! I had such a great time!

Many thanks to @Chloeormerod @poconnor @skat plus others for chatting with me and making the event that much more better!

I also have pictures of the slides of the latest drugs that, once I’m back home, I’ll make some online album and share the album for folks who couldn’t attend to see 👍 ( @ClairTheGinger )

#ESPKU2023 #ESPKU #NSPKU #NSPKU2023

The ESPKU cake has been lit!!!

#ESPKU #espku2023 #NSPKU #NSPKU2023