The following hashtags are trending across South African Mastodon instances:

#Wordle
#wordle1752
#bohringopitzsyndrome
#bosawerenessday
#rarediseaseday
#geneticdisorders
#supportrarediseases
#bosfoundation
#rarediseasecommunity
#goldforbos

Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.

๐—•๐—ผ๐—ต๐—ฟ๐—ถ๐—ป๐—ด-๐—ข๐—ฝ๐—ถ๐˜๐˜‡ ๐—ฆ๐˜†๐—ป๐—ฑ๐—ฟ๐—ผ๐—บ๐—ฒ (๐—•๐—ข๐—ฆ) ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐——๐—ฎ๐˜† - ๐—”๐—ฝ๐—ฟ๐—ถ๐—น ๐Ÿฒ

Today, we stand together to raise awareness about Bohring-Opitz Syndrome (BOS), a rare genetic disorder affecting fewer than 200 people worldwide. BOS is caused by a mutation in the ASXL1 gene and can lead to serious health challenges including feeding difficulties, respiratory infections, developmental delays, and more.

On this day, we honor the strength of families facing BOS, support ongoing research, and educate the public and medical community to improve care and understanding.

Join us in spreading knowledge and hope for those impacted by BOS.

๐Ÿ’› Wear gold and denim today to show your support!

#BohringOpitzSyndrome #BOSAwerenessDay #RareDiseaseDay #GeneticDisorders #SupportRareDiseases #BOSFoundation #RareDiseaseCommunity #GoldForBOS #DenimForRare #FightBOS #SCABPharmacy

๐—•๐—ผ๐—ต๐—ฟ๐—ถ๐—ป๐—ด-๐—ข๐—ฝ๐—ถ๐˜๐˜‡ ๐—ฆ๐˜†๐—ป๐—ฑ๐—ฟ๐—ผ๐—บ๐—ฒ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐——๐—ฎ๐˜† ๐ŸŒŸ

Today, April 6th, marks an important milestone as we celebrate Bohring-Opitz Syndrome Awareness Day, honoring the journey of families affected by this rare genetic condition. Ten years ago, on this day in 2011, the first support group was formed on Facebook, creating a platform for parents and caregivers to connect, share experiences, and provide support.

๐—ช๐—ต๐˜† ๐—š๐—ผ๐—น๐—ฑ & ๐——๐—ฒ๐—ป๐—ถ๐—บ?

- Gold represents the love and brilliance of our children, who are precious and bring light into our lives. Many children with Bohring-Opitz Syndrome are drawn to shiny objects, making gold a fitting symbol.
- Denim signifies the awareness of rare and genetic diseases. Blue denim is recognized as the color for these conditions, fostering unity among families facing similar challenges.

This year, we want to encourage everyone to learn more about Bohring-Opitz Syndrome and support the families navigating this journey. Together, we can make a difference!

Join us in raising awareness by sharing this post.

#BOSAwarenessDay #BohringOpitzSyndrome #RareDiseaseAwareness #SupportFamilies #GoldAndDenim #GeneticConditions #BOSFoundation #CommunitySupport #HopeForBOS #SCABPharmacy

Letโ€™s continue to spread awareness and support one another! ๐ŸŒˆ