I am reviewing processes and recommendations for #SecondaryData analysis projects for our #ResearchEthics Committee, especially ones where data access is centrally managed (e.g., via @UKDataService ). Here, they require standard review.

How is this at your place?

Any views on this?

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NB: Yes, there are many ethical considerations in advance (e.g.,
https://mastodon.social/deck/@jrboehnke/109823124976479472
and for #RoutineData
https://mastodon.social/deck/@jrboehnke/113940722709618338).
My question is about applying for ethics review for such a project.

Just registered for the #NCRM webinar "Exploring #Ethnicity through National Datasets"
https://events.teams.microsoft.com/event/f1f91205-7d44-4add-871d-8f4f894a271e@c152cb07-614e-4abb-818a-f035cfa91a77

The line up of talks looks great, covering how ethnicity was/is covered in the #Census, as well as researching identity, aspiration, social mobility, and the justice system.

#Surveys #SecondaryData

Microsoft Virtual Events Powered by Teams

Microsoft Virtual Events Powered by Teams

Read from #DundeeUni colleague Louise Marryat and colleagues about the power of public involvement in data research:
"We are privileged to have a huge amount of data available to research: using it in an inclusive way is not only ethical but also leads to more valuable impacts."

https://www.britishscienceassociation.org/essay-12-dundee-voices-in-data

#SecondaryData #DundeeUni

Voices in data: the power of public involvement in data research

Administrative data is collected about us every day - when we're paying tax, doing an exam or going to the doctor. These data sets are a powerful source of information to researchers, but with such complex analysis techniques, how can communities be effectively involved? This essay explores the challenges and offers practical advice and examples of involving people in data research in order to ensure it accurately captures and reports the experiences of the people behind the data.

British Science Association

So glad that this was a recorded opportunity, so I am very much looking forward to watching this!

More info on topics and speakers:
https://www.pathlms.com/isoqol/webinars/32102

#HRQL #SecondaryData #ClinicalRegistries
@ISOQOL

Measuring What Matters 2023 | ISOQOL

Measuring What Matters in Oncology: Translating research into clinical practice using clinical registries Start...

pathlms.com

As a prerequisite for the above (especially when you work with #longitudinal #secondarydata):

'As physical environment factors have not been a priority in large-scale, longitudinal studies in the past, more attention should be paid in the future to include data on the physical environment in these studies, or to make it more straightforward for the data users to link their own physical environment variables.'

#greenspace #mentalhealth #wellbeing #childdevelopment #adolescence