One of the hardest things about raising a neurodivergent child is that the approved strategies for behaviour management Just Don’t Work.

When you, the parent, are undiagnosed, unsupported & still in denial & shame about your own lifelong neurodivergence the obvious conclusion is ‘it’s like this because I am bad & broken & inadequate & I may as well die’.

From the inside, the experience of being a child like this, or a parent like this, is living with constant, extreme terror. Self loathing & suicidal ideation become part of the daily air we breathe.

My kids are adults now but I still hold this terror in my body. Every day.

The way to understand these kids’ extreme behaviours is to LISTEN TO US. Please.

#neurodivergence #PDA #ProfoundDesireForAutonomy #AutisticElders #trauma

https://www.abc.net.au/news/2025-09-16/pathological-demand-avoidance-awareness-of-autism-subtype/105772066?utm_source=abc_news_app&utm_medium=content_shared&utm_campaign=abc_news_app&utm_content=other

Pathological Demand Avoidance, a little-known profile of autism affecting kids and adults

A surge of professional and personal interest in Pathological Demand Avoidance (PDA), an autism subtype — which in children can affect everything from cleaning teeth to attending school — has led to Australia's first-ever PDA conference, to be held in Perth in November.    

ABC News