SFO Museum's Instagram BotFeb 16
"Lincoln Beachey was born in San Francisco in 1887. He had an early fascination with aerial experimentation and was soon an accomplished professional aviator and aerial stunt performer. He was hired to perform exhibition flying for the 1915 the Panama-Pacific International Exposition, held in San Francisco between February 20 and December 4. Early aviation was as risky as it was profitable, with tens of thousands of people turning up to watch “The Man Who Owned the Sky.” Lincoln Beachey tragically lost control of his plane during a fatal stunt over the San Francisco Bay on March 14, just 11 days after his 28th birthday." This was posted to our Instagram account on November 04, 2015 – https://millsfield.sfomuseum.org/instagram/1729361387/
Jan R. BoehnkeFeb 16

The Alberta PROMs and #EQ5D Research and Support Unit (APERSU) is an initiative that operates across the health system. Read about the development of its patient engagement network, that aims to connect those whose experiences collectively reflect the broad scope of PROMs use in Alberta:
https://link.springer.com/article/10.1186/s41687-026-01001-8

#PPIE #PatientCentered #HRQOL

Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network - Journal of Patient-Reported Outcomes

Patient and public involvement and engagement (PPIE) is crucial for developing patient-centered healthcare research and improving health outcomes. While pa

SpringerLink
Jan R. BoehnkeDec 1

Great day at our Postgraduate Research Symposium at the School of #HealthSciences #DundeeUni !

21 presentations across such diverse topics as breastfeeding, the Dysphoric Milk Ejection Reflex, #MentalHealth literacy, stigma of mental illness, the nursing curriculum, #PPIE in #RCTs, skin to skin care, traumatic birth and... and... 👏

Great opportunity to welcome new students, and to see projects develop over the years.

#PGR #PhD

Jan R. BoehnkeNov 25

How to engage w collaborators in health state valuation, how to include their voices?
https://link.springer.com/article/10.1007/s40273-025-01550-8

Based on 37 guidance documents and studies, the team develops a 15pt framework for developing guidance to improve practice in the field.

#HealthEconomics #PatientCentered #PPIE

Improving Collaborative Engagement in Health State Valuation: A Scoping Review of Current Practices and Emerging Recommendations - PharmacoEconomics

Background and Objective Collaborative engagement with individuals invested in or affected by health research, beyond researchers themselves, is advantageous and encouraged by major funding bodies. However, the degree of collaborative engagement in health state valuation is unclear. A scoping review was conducted to (i) identify recommendations on best practice in collaborative engagement in health economics and related literature; (ii) identify examples of collaborative engagement in valuation studies; and (iii) map (ii) onto (i) to identify current practice and future recommendations. Methods Eight databases were searched in March-May 2024, with grey literature searches in August-September 2024. For objective (i), reports or manuscripts in health economics or patient-reported outcome measure development/evaluation of any date providing recommendations for collaborative engagement were included. For objective (ii), articles published since 2019 featuring health state valuation and collaborative engagement were included. Best practice recommendations were extracted and thematically synthesised. Examples of collaborative engagement were extracted and mapped against recommendations. Results Twenty-two records featuring recommendations and 15 valuation studies were included. A 15-item framework of emerging best practice recommendations for collaborative engagement was synthesised. Most examples of collaborative engagement involved patients and/or experts helping inform health states for valuation. There was no evidence for 9 out of 15 synthesised recommendations having been applied in any of the valuation studies and only minimal evidence was extracted for the remaining six. Conclusions Collaborative engagement in health state valuation is underdeveloped and unaligned with literature recommendations. A 15-point framework has been developed as a strategic starting point for developing guidance to improve practice in the field.

SpringerLink
LateNiteNov 25
#SanFrancisco #PPIE #1915
Jan R. BoehnkeJun 17, 2025

Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIE

The aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.

#ISOQOL #HRQOL #PatientCentered #Psychometrics

SFO Museum's Instagram BotApr 12, 2025
This was posted to our Instagram account on November 10, 2015 – https://millsfield.sfomuseum.org/instagram/1729361379/
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SFO Museum's Instagram BotMar 28, 2025
This was posted to our Instagram account on April 27, 2015 – https://millsfield.sfomuseum.org/instagram/1729361805/
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The Kid's TrialOct 4, 2024

We're in our last few days of 'Planning the trial!' If your child hasn't had their say yet, there's still time! We are almost ready to run @TheKidsTrial and find out if sleeping with a comfort item makes a difference to how well kids sleep compared to NOT sleeping with a comfort item!

Join the #adventureinscience today! #trials #STEMforKids #PPI #PPIE

Show threadKirstieJaneSep 9, 2024

We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.

Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data

They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.

#PioneerAIM #AIMRSF