Lewis Moody Shares His Personal Experience with Motor Neurone Disease Diagnosis

Former England rugby captain Lewis Moody opens up about his diagnosis of Motor Neurone Disease (MND), a progressive neurological condition where the brain's messages gradually fail to reach the muscles, leading to severe physical impairment. In this 11-minute feature, Moody discusses the impact of t... [More info]

While training at the gym, I accidentally looked at the sun reflecting off a windshield and that triggered my scintillating scotoma. I spent the final third of my gym time minus about a third of my vision. A bright circle of electric blue-white light, like sparks from an arc welder, strobed across my field of vision. I was afraid I wouldn’t be ok to ride my bike home, but thankfully it went away after about fifteen minutes. I guess I’m going to have to wear my sunglasses at the gym.

Whenever this strikes, I’m always scared it will not go away. At its worst, I’ve had it 24/7 for four months across about 75% of my vision. Because it’s such an unusual disorder, most folks have no idea how incapacitating it is. I usually get a sort of hangover afterwards which leaves me with increased brain fog.

I suspect it might have been caused by the Irvings spraying DDT over my home a bunch of times when I was a little kid. #ScintillatingScotoma #MigraineAura #NeurologicalCondition #BrainFog #InvisibleDisabilities #IndustrialPoisoning