Master the art of caring without being controlling. Remind yourself or the other person to have boundaries and to listen to my body, or else there will be consequences of pain and discomfort but without forcing them to stop what they are doing.

You can offer a snack and say, "Oh, maybe we should sit down for a moment." Understand that in many moments we are enjoying all the things our bodies allow us to do. So let them enjoy those moments, even if you know they will probably have a flare-up later. Don't say, "I told you so, you're trying too hard," or "You should have done this," or "You should have done that." Just remind them, give ways to help, look for possible solutions, and understand my autonomy.

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Communicating better with healthcare professionals is essential. Because it relates pain to how difficult it is to do everyday things. For example, I can't ignore pain for more than 30 minutes, but watching TV can distract me a bit, although I can still function. However, I sometimes have a hard time concentrating, and moving is even harder. Nausea and dizziness can set in, and at those times, I'll probably be screaming and cursing.

Fortunately, I've only experienced a 10 on the pain scale once in my life, which is either going in and out of consciousness or just being completely unconscious. So yes, the question of where you are on the pain scale is a pop quiz, a trick question. Healthcare professionals should know that when a patient says they're in pain, they're actually experiencing something very real.

This Manosky pain scale is helpful because it's relative. Even if someone has a higher pain tolerance than I do, they'll still be cursing when they hit a nine on their tolerance. I also want to point out that during a physical assessment, if the pain is a five or higher, and then if I don't move or make noise, it can be a four or lower. This is for discussion and education.
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