VIDEO: Eddie Vedder Stops by to Discuss Epidermolysis Bullosa Doc 'Matter of Time'

https://misryoum.com/us/trending/video-eddie-vedder-stops-by-to-discuss-epidermolysis/

[embed]https://www.youtube.com/watch?v=B2aRYpFGhJo[/embed] Rock and roll icon Eddie Vedder joined the Stern Show Tuesday morning to speak with Howard and his listeners about an issue very near and dear to his heart: epidermolysis bullosa (EB). As chronicled in “Matter of Time,”...

#VIDEO #Eddie #Vedder #Stops #Discuss #Epidermolysis #Bullosa #Doc #Matter #Time #US_News_Hub #misryoum_com

https://www.theguardian.com/football/2023/jun/11/graeme-souness-we-all-take-things-for-granted-ill-try-and-be-a-better-person

#theguardian #epidermolysis #bullosa
“I’m struggling right now,” Graeme Souness says quietly, his eyes swimming while he tries to hold back the tears as he thinks of Isla Grist, a 14-year-old girl from Inverness, and the stoicism she shows amid almost unbearable suffering. Isla has epidermolysis bullosa (EB), a rare genetic disorder which blisters half the skin covering her body.

https://english.elpais.com/science-tech/2022-03-29/trials-of-new-gene-therapy-cure-butterfly-children-of-open-wounds-that-had-not-healed-for-years.html

Trying to cure EB
#Epidermolisys #ED #Bullosa #gene-therapy