I research and teach digital sociology at the University of Sheffield, UK where I co-lead the Patient experience and voice theme of Sheffield Cancer Research.
I am P.I. of the Leverhulme Trust-funded project Previvorship: http://bit.ly/3MpCAAs where I study social media, (#BRCA and #Lynchsyndrome) genes, and experiences of preliving cancer.
I am a #commodon interested in
#digitalmethods
#digitalhealth
#platforms
#socialmedia
#socialnetworks
🎆 As we bid farewell to 2024, I'm excited to share our “Whitepaper on The State of Social Media Research APIs & Tools in the Digital Services Act Era.”
📌 Key Recommendations:
Define "publicly accessible data."
Standardize APIs with direct links.
User-friendly tools and dashboards.
Independent data audits.
EU-supported researcher communities.
📄 Read it: https://disinfo-prompt.eu/posts/5TVAc369E7KfgFi4Pcots6
💡 Explore our chatbot: 40point12.eu
Last week we presented at #AoIR2024, hosted by our very own University of Sheffield! Hannah Ditchfield talked about the different types of identity that are performed in the most ‘visible’ TikTok content about #brca and #lynchsyndrome.
This is part of our work from the project Previvorship (bit.ly/3MpCAAs)
This book explores how the complex scenario of platforms, practices and content in the contemporary digital landscape is shaping participatory cultures of health and illness. The everyday use of digital and social media platforms has major implications for the production, seeking and sharing of health information, and raises important questions about health peer support, power relations, trust, privacy and knowledge. To address these questions, this book navigates contemporary forms of participa
With the increasing use of predictive genetic testing, a rising number of people are becoming previvors: healthy individuals coping with the awareness of having a genetic predisposition to cancer. Previvors are faced with the possibility of prevention, which could take the form of constant
Fabio Giglietto