Kyra Ocean 💘

@kyraocean
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278 Following
36 Posts
Artist⌁Researcher⌁Curator⌁Strategist ⇢ Computing Arts • Network Culture • Media Studies • Cyberfeminism ↯ @wwwtxt @softdetours『she/her』KEER-ah ♡彡
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While I’m finding it harder to engage with social media in general, @wwwtxt is a welcome account on *any* platform.
"The open internet will never go away, too many people will complain!" But will they? ↯92JUN

The article falls short in describing acute instances like my own—those of us who face immense daily challenges even after embracing management strategies 24/7 and all available treatments.

While improved, our lives still orbit around MCAS and it’s constellation of symptoms.

That said, it’s a solid article overall and excellent to see the neurodivergent link so prominently highlighted alongside the more frequently linked EDS and LC.

Visibility feels good! 💕

It’s encouraging to see Mast Cell illnesses receiving more visibility.

This article effectively describes the multisystem chaos, unpredictability, and destabilizing reality of MCAS. It also summarizes treatments, long-term management, and disability.

“What Do ADHD, Long Covid And Ehler’s Danlos Have In Common? Meet The Mast Cell.”
https://www.forbes.com/sites/drnancydoyle/2022/12/03/what-do-adhd-long-covid-and-ehlers-danlos-have-in-common-meet-the-mast-cell/

What Do ADHD, Long Covid And Ehler’s Danlos Have In Common? Meet The Mast Cell.

For International Disabled Person’s Day, read below for an overview of Mast Cell Disease, how it is disabling and how to get help. It contributes to continued, low levels of sickness that can plague productivity, career growth and labor market participation.

Forbes
This decentralized network welcomes hackers, phreaks, virii coders, crackers, cyberpunk wannabees, civil liberties groups, cypherpunks, futurists, artists, and anyone anti-commercial. ↯94JAN
So which room in #ThePalace is everyone hanging out in this weekend?
It gives me a strange feeling of optimism (how rare) to see us all coming together and trying to keep our communities alive. And maybe even make them better.
MONDO 2000 logotype
⟨designed by Brummbaer ca. 1989⟩

Nettitudes, Josephine Bosma

Creating GeoCities Websites, Ben Sawyer

Social Media Archaeology and Poetics, edited by Judy Malloy

Lurking, Joanne McNeil

Digital Folklore, Olia Lialina + Dragan Espenschied

ReadMe! by Nettime, edited by Josephine Bosma

Soft Computing, Brian Reffin Smith

Flame Wars, edited by Mark Dery

CyberFeminism, edited by Susan Hawthorne + Renate Klein

Creating Successful BBSes, Alan Bryant

Internet Culture, David Porter

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