@katymontgomerie
I understand that. But you did ask.
I understand that. But you did ask.
Katherine O'Donnell
- 118 Followers
- 78 Following
- 29 Posts
Journalist, scamp, parent to teen and a grown-up, LGBTI rights campaigner, board member Equality Network, former night editor of The Times, Scotland. Lives Scotland and France. [she/her]
@katymontgomerie
Hi Katy,
I don't think I could bear any more of their horrors cropping up in my timeline here. There are times on Twitter that I have to mute your feed just so their crap can't get to me.
I understand why you take the approach over there that you do - and I admire your stamina - but the fact that the people you interact with are not here, suggests to me that you may benefit from rethinking things for Mastodon. K xx
Hi Katy,
I don't think I could bear any more of their horrors cropping up in my timeline here. There are times on Twitter that I have to mute your feed just so their crap can't get to me.
I understand why you take the approach over there that you do - and I admire your stamina - but the fact that the people you interact with are not here, suggests to me that you may benefit from rethinking things for Mastodon. K xx
We have to ask ourselves whether losses thus inflicted on society in ever greater numbers are worth it to save the investment and ongoing costs of a National Care Service?
I'd say that the answer in a progressive civilised society is OF COURSE NOT. We need a National Care Service. We need it to be well funded and generous because almost all of us will require its services eventually.
I'd say that the answer in a progressive civilised society is OF COURSE NOT. We need a National Care Service. We need it to be well funded and generous because almost all of us will require its services eventually.
So, often by the time carer comes to the end of their caregiving, they are carrying forward a heap of problems they didn't have before:
Poor health (depression, PTSD, anxiety, bad back etc)
Broken and disrupted social networks
Financial hardship
Pension issues
Career loss
Loss of inheritance
These in turn settle on the next generation down and so on.
Poor health (depression, PTSD, anxiety, bad back etc)
Broken and disrupted social networks
Financial hardship
Pension issues
Career loss
Loss of inheritance
These in turn settle on the next generation down and so on.
@kateweb Thank you, Kate. I've heard of the book but not read it - yet!
@christineburns You and your science ... pah.
It was giants, GIANTS I tell you!
It was giants, GIANTS I tell you!
The financial consequences are disastrous. In the UK, people may be forced to sell their homes to pay for residential care. https://www.ageuk.org.uk/information-advice/care/paying-for-care/paying-for-a-care-home/do-i-have-to-sell-my-home-to-pay-for-care/
It is often the only asset the PWD might have. Hopes that they might help their children and grandchildren turn to ashes.
Caregivers suffer ruinous financial consequences, too. Unable to work, in the UK they can claim £69.70 a week in #CarersAllowance - far, far below the poverty threshold.
It is often the only asset the PWD might have. Hopes that they might help their children and grandchildren turn to ashes.
Caregivers suffer ruinous financial consequences, too. Unable to work, in the UK they can claim £69.70 a week in #CarersAllowance - far, far below the poverty threshold.
Caregiving to people with #dementia ends in one of two ways - the death of the PWD or their needs and safeguarding becoming so overwhelmingly demanding that they can only be met by a team in a care home.
Along the way, the caregiver usually has to give up work, vital social and family commitments, their own wellbeing and health.
Carer Burnout is reached at the point where nobody could go on alone.
But almost always, they go on alone.
Along the way, the caregiver usually has to give up work, vital social and family commitments, their own wellbeing and health.
Carer Burnout is reached at the point where nobody could go on alone.
But almost always, they go on alone.
Changes in behaviour and capability can be slow or abrupt and severe ... or both. The caregiver is obliged to adapt to those needs whatever the demands of their own work, family and health circumstances.
That so many do take on this task and cope selflessly and heroically is testament to our human capacity for love and endurance. But it is also terribly wrong that we allow them little or no help and the consequences of this failure are felt across society.
That so many do take on this task and cope selflessly and heroically is testament to our human capacity for love and endurance. But it is also terribly wrong that we allow them little or no help and the consequences of this failure are felt across society.
So, how does caring for a person with dementia impact the lives of the caregivers?
As the PWD loses capacity to do mundane things such as keep up with their personal admin, paying bills, doing banking and managing their own healthcare, someone else has to step in. It's not trivial, done-in-flash stuff. It's the visits to the doctor and dentist, the unpicking of an often chaotic situation that has built up as the illness begins to disrupt thinking.
As the PWD loses capacity to do mundane things such as keep up with their personal admin, paying bills, doing banking and managing their own healthcare, someone else has to step in. It's not trivial, done-in-flash stuff. It's the visits to the doctor and dentist, the unpicking of an often chaotic situation that has built up as the illness begins to disrupt thinking.