Sense, science, sanity, spirit, light, open minds, and the defeat of disabling microbes. Natural light, high quality metaphors, and unweaponized gratitude are medicinal.
Advocate & support group facilitator for those w debilitating ME/CFS, POTS/OI, Long Covid/PASC, FMS, Lyme, and similar syndromes. Find me also volunteering with @CFSnova , MEActionNC, and Renegade Research.
Pets, Nature, Big Band Swing, Sewing, Crafting, Cooking.
Next Renegade Research Clinician's Roundtable is Amatica Health's Jack Hadfield and Nicholas Boyd-Gibbins.
Friday, Nov. 21, 12 pm Eastern US
Free. Open to public. Invite your doctors.
Jack and Nick discuss Amatica Health's MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
https://us06web.zoom.us/webinar/register/1717627039381/WN_CWW-sHM2QzyLrVV_YGJe0Q
Applied Clinical Discussion – Improving POTS and other MECFS issues by Treating Pelvic Venous Congestion. Steven J. Smith, MD, will be joined by guest panelist and co-author Peter Rowe, MD for interactive Q&A. Clinician questions will be prioritized. Dr. Smith will discuss hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD, & more. Dr Smith is an expert in Pelvic Congestion Syndromes and intervention with Ablation and Stenting. Dr. Smith, a retired interventional radiologist now focuses on research. He makes the case for poor blood flow being a core clinical issue. His studies show patient improvement across 5 centers, at 3-, 6-, and 12-month follow-ups, and across numerous symptoms. Studies published iin Phlebology: The Journal of Venous Disease: Nonpelvic comorbid symptoms of 45 patients with pain of pelvic venous origin, before and after treatment 8/24 pubmed.ncbi.nlm.nih.gov/39126670/ "Improvement in chronic pelvic pain, orthostatic intolerance and interstitial cystitis symptoms after treatment of pelvic vein insufficiency" 4/24 pubmed.ncbi.nlm.nih.gov/38050791/ "An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes" 7/22 pubmed.ncbi.nlm.nih.gov/35831253/ "Imaging findings of pelvic venous insufficiency in patients with postural orthostatic tachycardia syndrome" 8/20 pubmed.ncbi.nlm.nih.gov/32757696/ Other: Standing Up to POTS Podcast: Audio, with written transcript 11/24 https://www.standinguptopots.org/potscast/e234dr-steve-smith-on-how-fixing-pelvic-venous-disorders-improves-pots-and-other-syndromes
The next ME/CFS & LC Clinician's Roundtable hosted by Renegade Research and @RemissionBiome
is
Fri. Dec 6, '24, 1pm Eastern US.
Presenter is physician
Brayden Yellman, MD, of the Bateman Horne Center @batemanhorne.
Open to practitioners, researchers, patients, public. Free. Will be recorded and available at YouTube Channel for Remission Biome.
After presentation there is time for Q&A. Clinician questions prioritized.
Register here:
https://us06web.zoom.us/webinar/register/3217328995367/WN_FiUBcZDkR_-jIpBvqQ2_lQ
Dr. Yellman, from the Bateman Horne Center, will discuss his approach to diagnosing and treating patients with ME/CFS, Long COVID, and other Infection Associated Chronic Illnesses (IACI). https://batemanhornecenter.org/about/staff/brayden-yellman-md/
You’re invited! Fri, 3/15/24, 1pm EDT. Free. For physicians, open to patients.
A Clinician’s Roundtable for ME/CFS, Long COVID, & Post-infectious chronic illness
by @RemissionBiome
with
David Kaufman, MD, internist who
helped w ME/CFS consensus recs in Mayo Clinic proceedings
&
Ilene Ruhoy, MD, neurologist + an environmental toxicologist
Physician questions will be prioritized. Will be recorded.
Register https://rb.gy/t5lm0k
The Renegade Research Clinician's Roundtable offers a dedicated forum for practicing clinicians engaged in the treatment of post-infectious chronic illness and those who want to better serve this patient population. This collaborative platform is designed to facilitate the presentation of diverse clinical approaches, foster discussions on individual cases, and encourage the exchange of best practices. Clinicians participating in this roundtable will have the opportunity to share their experiences, insights, and strategies in managing complex post-infectious conditions. The goal is to cultivate a collective knowledge base that can positively impact patient outcomes. By bringing together a community of experts, the roundtable aims to enhance the understanding of effective clinical practices, ultimately contributing to improved care for individuals navigating the challenges of post-infectious chronic illness. Learn more about Dr. Ruhoy and Kaufman - https://www.centerforcomplexdiseases.com/ Listen to their podcast - https://www.patreon.com/unraveledpod/about