@rebeccajtiffany I’m sorry to hear he hasn’t been able to attend. My daughter missed 7 months. In the summer, she uses calf sleeves on hot days we are home. All other times, thigh-high, open toe for blood pooling. However, we had to focus on sleep issues first as that was causing everything else to get worse. Delayed release melatonin, white noise machine, strict rise/sleep schedule, water bottle by bed for morning. dysautonomia books helped (me) a lot.
cuthbadth
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@3TomatoesShort I buy the compression stuff for my #potsie open-toe thigh high work best here. Waist-high leggings caused too many triggers pulling down and back up for potty, etc., makes it harder to see benefits. Plus, with thigh-high, can sleep with them on if needed for really bad days. Our approach is incremental quality of life improvements (stack up & celebrate small wins). Switch to bc pill eliminating menstrual cycle was another improvement.
@rebeccajtiffany if you haven’t already gotten there, quality of life changes based on ‘spoon theory’ can be helpful. My daughter most recently went from really long hair to short hair, not enough energy to keep it combed. Having easy access to less carb-heavy / more protein snacks, to help with small meals approach. Laying out clothes night before, to make it easier in morning. She uses shower chair, on weekend, to save more energy for school week.
@rebeccajtiffany For my daughter, once we realized there is no instant ‘cure’, we focused on improving quality of life with small mitigations that stacked up over time. Got sleep (mostly) fixed first, then find all the triggers and address over time. Then started with a 1 minute a morning recumbent bike, adding 1 minute a day (counts as PE for school). Added compression thigh highs, sleeping wedge for bed, and so on, up to more recently, travel meds for simple car trips.
@janetlogan @agenderfox if the heart is the cause and not a symptom, the cardiologist should find something. Else, deem the heart healthy and suggest the BPM could be a symptom of what controls the heart. If so, maybe look into dysautonomia, which includes CFS, ME, POTS, and possibly even the IBS / fibro (my mom had fibro, my sympathies). A theory is Covid, Mono/EBV, etc can trigger autonomic system regulation issues (e.g., vagus nerve).
@janetlogan @agenderfox May be very different than your issues! Hope docs get u right Dx and better soon!! That said, Potsies here sleep on wedges and sleep issues were really bad early (getting up in middle of night, go potty, and pass out or have heart slowness then racing if made it back to bed). I would add symptoms of POTS are not fully present in the acronym. They have fatigue, exercise issues, travel issues, body temperature regulation issues, digestive issues.
@janetlogan @agenderfox i’m no doctor, I just live with some who had Covid / LongCovid. You may want to look into postural orthostatic tachycardia syndrome (pots), and more generally, dysautonomia. The good/bad about POTS, there is no cure-all, but many mitigating measures don’t require controlled substance prescriptions.
@FeralRobots @pieist @Hawkmoon @Green_Footballs I just can’t rule out the ‘corporate raider’ perspective yet (harvest/sell assets of company and then declare bankruptcy for further tax write-offs iirc). I also don’t rule out lack of sleep, inflated ego, some drugs and/or spite (misery loves company) as reasonable explanations for what appears to be a series of very poor decision-making with $$ and the bird site.
@pieist @Hawkmoon @Green_Footballs what if Elon got money from oil-rich countries and other state actors so he already made his money. He can then sell private DMs / posts to countries that really want that information for more money. Then he can use the Twitter data to build a ChatGPT clone to make more profit (which means he needs to block others from his private data well). Is the incompetence just a distraction from the magic trick? Or is it real?
@brunoleuschner @uanews Sounds like he stole a plot line from Hitchhiker’s Guide to the Galaxy.