On March 6th, UNCAN-Connect, CANDLE, and EU-CiP: The EU Cancer Information Portal Project held a joint Persona Workshop with the EU cancer stakeholder community. This session, following the first persona workshop CANDLE held in November, aimed to build another four personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context.
📖 Read more about the session: https://candle-project.eu/news/candle-uncan-connect-and-eu-cip-ncdn-persona-webinar/
📢 CANDLE’s second newsletter is out!
Read to know more about our upcoming Persona Workshop with UNCAN-Connect and EU-CiP: The EU Cancer Information Portal Project, CANDLE participation in external events, media features, and more.
Check it out here: https://429369.eu2.cleverreach.com/m/16891309/
Subscribe to the newsletter to receive each installment: https://candle-project.eu/newsletter/
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✏️ On Feb 10, the eCancer Working Group published its recommendations on implementing the UNCAN.eu and the ECPDC platforms. The coordination teams of UNCAN-Connect, CANDLE, and EU-CiP welcome the publication of the eCancer Working Group paper and its comprehensive recommendations on the core functions, future governance, and use of cancer data in Europe.
Read our joint statement: https://lnkd.in/ddhNt6cg
Read the recommendations: https://lnkd.in/dcpc8j6y
In this installment of the CANDLE WP Series, we are introducing Work Package 4: Co-creation and Maturation Models for NCDNs.
WP4 aims to co-create and implement the CANDLE Maturation Model, guidelines, and assets for NCDNs. The work package will also identify inequalities in maturation from piloting cases and map the basis for the development of training resources.
Learn more in the video below!
🎉 Yesterday, on November 26th, CANDLE held its first Persona Workshop with the EU cancer stakeholder community. This session aimed to build personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context. The workshop was attended by 62 participants, all engaged in productive conversation.
Read more about the meeting: https://www.linkedin.com/feed/update/urn:li:activity:7399756955944230912
Are you interested in cancer data? Sign-up for our Stakeholder Engagement Group!
✏️ Jointly with our synergy project EU-CiP, we launched a registration form where stakeholders can sign up to engage with CANDLE, EU-CiP, or both projects. This joint initiative aims to value the time and energy of our stakeholders.
🕯️We are looking for stakeholders from healthcare, patients, research, policy, industry, carers, standardisation and governance, and beyond.
Register here: https://lnkd.in/evg3JyFr
💡 On this installment of the CANDLE WP series, we introduce the CANDLE WP3: Technical Interoperability of NCDNs with Major Platforms in the EHDS Framework. This work package aims to promote interoperability of the NCDNs with the UNCAN.eu and ECPDC platforms. The lead of this WP is the Barcelona Supercomputing Center.
Find out more about WP3 in the video below!
Tomi Mäkelä - director of the Finnish Cancer Center and CANDLE WP2 lead – will speak at the EUNetCCC 2025 Annual Meeting in Paris! 🇫🇷
He will be one of the speakers in Parallel Session 5 – Unlocking data for better cancer care and control within the EunetCCC network, happening on November 6th, 16:00 - 16:45.
You can read more about CANDLE’s representation in the meeting and the full schedule here: https://eunetccc2025.eu/programme/
We invite all interested stakeholders to join CANDLE’s National Cancer Data Nodes Persona Webinar, happening November 26th, 14:00–15:30 CET.
In this workshop we will build personas mapped to National Cancer Data Nodes functions and the European Health Data Space. We encourage stakeholders from the EU cancer ecosystem to join: patients, survivors, cancer researchers and infrastructures, policy, industry, governance bodies, and beyond.
Read the agenda and register: https://emp.onl/UpOSF
📢 We are excited to introduce the CANDLE Project Work Package series, a collection of weekly posts where we will highlight the most critical aspects of each CANDLE WP.
💡 We kick off with the first series installment, an overview of WP2: National Cancer Data Node Concepts and Data Users. This work package will analyse ongoing NCDN efforts across different countries and identify cancer data users and their needs. The lead of this WP is FICAN.
Find out more about WP2 in the video below!