WhyDoYouThinkThatHow many days of missed sleep do you think you could hide from people?
I get massive screaming headaches that usually start mid-late afternoon and don’t go away until I sleep, but sometimes start up again first thing the next morning if I sleep poorly. If the person knows me well enough to know that, and knows what it looks like when I have such a headache, maybe 2 days? Only because theres a lot you can hide behind the fog of pain and saying “yep, this is the same headache I’ve had for two days, I’m very tired of it”
Everyone else thinks I’m in dire need of sleep basically always, because I’ve become fairly low-energy (other than my stims, which are often not obvious anyway), have very thin skin around my eyes, plus often foggy and slow from headaches. And nod off whenever I’m slightly bored. But they aren’t wrong, as such, I could seriously sleep 15+ hours a day if I didn’t have shit to do.
I have had a handful of “status migraines” in my life and that is by far the worst pain. I am so sorry, and hope you can figure out a way to end them. Mine always came while I was sleeping - would wake up with them, but once started even a drop of water would make me puke, and no real sleep just sort of hallucinations. 5 days is the longest, I used to be able to go get them broken with injections of some opiate mixed with an anti nausea drug, it didn’t make it stop just put me so far away from the pain I could really sleep and I would wake up without the headache. Alas, that is disallowed now. Last (and hopefully the last ever) time that happened it was $1500 in the emergency room and a cold IV of some hopped up advil (doesn’t work AND doesn’t get you high enough not to care) with an antihistamine. The IV liquid does help so not dehydrated but it did nothing for the pain.
Sorry long rant but I feel you - those long severe headaches are the worst pain. Worse than childbirth, worse than broken bone.