peter_schMay 11
@[email protected] has moved

For those concerned about Palantir's access to NHS patients' data the news that the soon to be closed NHS England is about to grant Palantir & its associated contractors 'unlimited access' to patient data in the NHS Federated Data Platform which includes the anonymisation function.... suggesting that Peter Thiel's firm will have the ability to access patient information prior to it being made anonymous.

More evidence that patient data privacy is not a priority at NHS-E

#palantir #NHS
h/t FT

May 11 at 5:43amWeb
Show threadAngus MackenzieMay 11
@ChrisMayLA6 I spent my career as an NHS doctor and was taught to value patient confidentiality by exemplary peers. I can't really overstate the irritation I feel that I could have lost my registration and my job for revealing information that our political masters are falling over themselves to make available to an organization which is deeply unpopular for very good reason.
Show threadKevin RussellMay 11

@anxiousmac @ChrisMayLA6

The law and morality and a century of practice protect the privacy of medical patients.

Angus is pissed that Starmer is giving American fascists complete and total access to your medical and private information.

Because Starmer is an idiot, without a moral structure beyond power.

Remove Starmer today. Milliband or Burnham?

#uklabour

Show threadChristine Burns MBE 🏳️‍⚧️📚⧖May 11
@ChrisMayLA6 The one crumb of comfort I take is that, from personal experience of being continuously disappointed by the poor and inconsistent records exposed by the “NHS App”, the data is far less useful than it appears. I’ve always thought it ironic that the designers overspecified log in security (to the point of unusability sometimes) as the gateway to data that is so poor, full of holes and inconsistent. I mean I know my medical history and fail to find it there. It’s a mess.
Show threadChristine Burns MBE 🏳️‍⚧️📚⧖May 11
@ChrisMayLA6 What amuses me is the fine detail of the irrelevant (endless data about having been told the side effects of a vaccination because the nurse was diligent recording everything she did) but very little data beyond a handful of test results from the last 3-4 years when my practice finally came on board. It doesn’t even record optional vaccinations I’ve paid for privately at the local pharmacist because their system isn’t joined up. If you wanted the skinny on me don’t look here
Show threadChristine Burns MBE 🏳️‍⚧️📚⧖May 11
@ChrisMayLA6 My financial providers hold much more valuable information about me, their user login is pretty secure, but unlike the NHS platform they haven’t gone overboard on the overdone security theatre.
Show thread@[email protected] has movedMay 11

@christineburns

Yes, our doctor is constantly complaining about the opacity of the narrative records & how difficult it its to mine them for information relevant to the present health consultation....

Show thread<10%May 11
@christineburns @ChrisMayLA6
Hardly surprising: NHS computer systems within the same hospital that can talk to each other might help.
Show thread<10%May 11
@christineburns @ChrisMayLA6
This was probably the rationale behind the process that eventually ended up as hand the whole lot over to Nazis.
Show threadeat a bucket todayMay 11
@ChrisMayLA6 "not a priority" is quite the understatement.

do you know of a non-paywalled version of this story? it's deeply frustrating that something this important can't be viewed without money.

edit: reuters has a second-hand version https://www.reuters.com/world/uk/britains-nhs-grant-palantir-contractors-unlimited-access-patient-data-ft-reports-2026-05-11/
Show thread@[email protected] has movedMay 11

@bjc

only seen it in the FT I'm afraid

Show threadbeemohMay 11
@ChrisMayLA6 And what about those of us who previously opted out of being part of any central database?
Show thread@[email protected] has movedMay 11

@beemoh

Interesting Q.: perhaps NHS-E might have something to say about that?

Show threadMostlyTatoMay 11

@ChrisMayLA6
For what it's worth, there is the link below to opt out. I don't know if they honour this; I've previously read that they do but I'd be surprised if Palantir don't just do whatever they want.

https://www.nhs.uk/using-the-nhs/about-the-nhs/opt-out-of-sharing-your-health-records/

Opt out of sharing your health records

Find out how to opt out of sharing your health records for research and planning.

nhs.uk
Show threadRobrabMay 11
@MostlyTato @ChrisMayLA6 the fines for not honouring it can be massive but that assumes the regulators don’t just BOGU.