Mastodawn

For those concerned about Palantir's access to NHS patients' data the news that the soon to be closed NHS England is about to grant Palantir & its associated contractors 'unlimited access' to patient data in the NHS Federated Data Platform which includes the anonymisation function.... suggesting that Peter Thiel's firm will have the ability to access patient information prior to it being made anonymous.

More evidence that patient data privacy is not a priority at NHS-E

#palantir #NHS
h/t FT

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Christine Burns MBE 🏳️‍⚧️📚⧖May 11

@ChrisMayLA6 The one crumb of comfort I take is that, from personal experience of being continuously disappointed by the poor and inconsistent records exposed by the “NHS App”, the data is far less useful than it appears. I’ve always thought it ironic that the designers overspecified log in security (to the point of unusability sometimes) as the gateway to data that is so poor, full of holes and inconsistent. I mean I know my medical history and fail to find it there. It’s a mess.

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Christine Burns MBE 🏳️‍⚧️📚⧖May 11

@ChrisMayLA6 What amuses me is the fine detail of the irrelevant (endless data about having been told the side effects of a vaccination because the nurse was diligent recording everything she did) but very little data beyond a handful of test results from the last 3-4 years when my practice finally came on board. It doesn’t even record optional vaccinations I’ve paid for privately at the local pharmacist because their system isn’t joined up. If you wanted the skinny on me don’t look here

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@[email protected] has moved

@christineburns

Yes, our doctor is constantly complaining about the opacity of the narrative records & how difficult it its to mine them for information relevant to the present health consultation....