the yale disability & accessibility symposium keynote talk by jina b. kim was about disabled friendship as a source of care and knowing and healing from apocalypses both personal and political
script: https://docs.google.com/document/d/163uugjCpGJoS3YbR2cGuUmqMtb0epLLfofKvD6DI6pk/edit?tab=t.0
thankful for y'all
Cuerpos Justificados (Justified Bodies):
Our Lives, Our Stories (Nuestras Vidas, Nuestras Historias) talk:
https://docs.google.com/presentation/d/1_CcjTeeMT8C3_xK5sVByBa9EhS45ndJJn7HOCv05fCc/edit?usp=sharing
Cuerpos Justificados (Justified Bodies): Our Lives, Our Stories (Nuestras Vidas, Nuestras Historias) Joy Young, Genevieve Ramos, Elissa Larkin, and Timotheus “T.J.” Gordon April 7, 2026
"I unlearn this. I un-learn that
not everything I’ve called love is a place I have to call home anymore."
poem by Joy Young, autistic poet
https://docs.google.com/document/d/1E_mi4W1kyt2iR16lBSpe8cgcwJnZTgk34nw9ivbUjis/edit?tab=t.0
There is another shoe. I feel it un-fall from the pit of my stomach. At night I untuck my grief from the warm space between my partner and our dog. I un-call this grief. We un-hang up the phone. Our lack of surprise fades into my father-in-law’s voice as he un-tells us another medical update. ...
"The immigration system is ableist by design. Migration itself is a disabling event.
For immigrants, disability becomes something to hide. To be an immigrant with a disability, to name the experience out loud, to refuse invisibility, this is a critical reimagining towards collective transformation.
Understanding ourselves as outsiders across multiple systems becomes a blueprint for imaging a world built differently. Cultural organize eyes art at this intersection is the archive, evidence, and the vision forward." - Genevieve Ramos
Poetry book "E" by Noa Micaela Fields, disability and trans poems
"This is her debut book publication that really centers mishearing/repetition as well"
"I started in poetry through slam poetry and spoken word, and particular. I think often the first thing people get when they perform their poems and particular for an audience is sort of this justice of recognition of their experience.
I think that is a really powerful thing to bear witness to as an audience member. That is something I think about a lot when I both perform and when I listening and trying to deeply engage with people's work."
- Joy Young
"I always tell people who are neurodivergent that performance poetry or storytelling shows and those spaces are actually really strangely artistically friendly for people who [can't or struggle to] verbally communicate. Because you do what you want to do in like three-minutes or however many minutes you have and then you run away.
To me, the ideal mode of human conversation is to say something and run away, and that is really my ideal communication style. Then come back and maybe have a conversation.
I think it gives us a lot of control. Control over our own stories. Time to think about how we want people to see us and also to consider how we see ourselves.
And then to kind of maybe consider how we see ourselves and how the world is seeing us is sort of not necessarily separate things, but sort of this Möbius strip that is ever moving. It's really hard to find the edge of."
- Joy Young
This was incredible to hear and I deeply relate
Many of the @illmarks are things that I didn't fully understand while I was creating them due to alexithymia, and by creating them I came to realize what I wanted to say.
However I still think a lot of them i would or do struggle to articulate out loud to people directly.
TLDR: spill your guts and run away, then come back is a relatable art MO for me
"We wrote our own headlines" collaborative poem
Headlines written by different panel attendees
Voiced by Cuerpos Justifcados
(Dis)trust in Precision Medicine Research: Increasing Disability Visibility and Inclusion in Health Research
is going on now, and they aren't sharing slides because it's preliminary research but is really good and necessary study. Here's some highlights:
Presenters are flagging distrust in healthcare systems due to how disabled people are treated
both generalized distrust, and specific previous negative interactions with clinicians
their top 6 causes of distrust are
- negative interactions with disciplinary staff
- healthcare system barriers
- negative societal attitudes
- specific discriminatory treatment in society (employment, education, economics)
- group harm (including fear about genetic material use and eugenics & genocide)
- inaccessibility
improving access is a huge issue to be grappled with for medicine research
(lol yes, but it's good to have it recognized)
Current federal laws require reporting sex, race, ethnicity
current law does not require general studies to disclose disability and so it is often ignored as an axis of assemblage / intersectionality
We all wrote a collective poem inspired by crip movement as part of the poetry & dance workshop:
Fists unclenching, palms smooth to the floor
I am unmoving while my cat dances to the sounds and the purrs. Bliss.
Baila, corazón a la tierra, Dance, heart to the earth
i want to see clubs where you can dance like that
Fluid shoulder rolling is my new love language
Taking up space is a birthright
Rompe barreras internas y externas, break down barriers internal and external
Magnify the body turned to dance on the sky
I like how cold it is. I like feeling soft and fragile against it.
I swim in it. I seize in it. Thoughts lead me astray to insecurity. I return to
Inside, outside, upside down, beyond
Exhala, sobrevive, renace, Exhale, survive, resurge
@NyxMir After all these years this thorn still persists. Insane.
It highlights extreme difficulty in most people to feel and understand the experiences of others when alien to our own.
But key is a systemic failure TO TRY, it seems.
Sadder also that when you try you expand yourself and expand outwards at the same time.
nyx mir
handmade ghost
Neil Moffatt
NilaJones