Julia

While I loved the exhibition, I definitely overdid things yesterday. Got a taxi from Euston to the gallery, but thought I’d save some ££ and get the tube back.

I’d forgotten that not all tube stations have escalators and the steps were too much for me.

Have realised that my exploding head syndrome is related to my chronic fatigue. And that the previous two times I’ve had it were also after times of over-exertion. A friend gets tinnitus, this must be my indicator.

#CFS #ExplodingHeadSyndrome

10:26amWeb
Show threadJulia11h ago
I don’t know what the heck is going on in my brain with the Exploding Head Syndrome. Maybe it’s my monkey brain trying to tell me it’s not safe to fall asleep? At first I thought it was just loud bangs, but it can be any loud noise, I just had jangling chains! #CFS #ExplodingHeadSyndrome
Show threadJulia11h ago

Oh and how hot is the underground?! I struggle to regulate my temperature as it is.

Also the overground train I got home was quite warm and had really horrible bright lighting. Sensory overload!

Okay no more train moaning, but you can see why anyone with an invisible illness/disability (an unknown number) might not want to use public transport. Temperature control is one of my main reasons.

Show threadJulia11h ago
I was impressed with the lifts around the Southbank Centre though. I looked at the steps up to Waterloo Bridge with dismay, but then I found a lift underneath them! #CFS