The worst thing about having a reasonably rare genetic heart condition is that it's often difficult to find other people to go "hey, is this normal" to, when your EP tends to focus on the clinical presentation rather than symptom management.

The second worst thing is going from having all the energy in the world, to having none and feeling really, really bad.

Yes, I'm in that second phase right now, and work isn't done for the day. Yes, it's my usual Friday exhaustion trough, exacerbated by being AuDHD.

But... I ... am wording bad right now. #chronicIllness #heart #health #LongQT