My disability is most notable when people are in range of seeing and/or hearing me in real life.
They see me, and most see something wrong.
They hear me, and many want me to shut up, 'calm down' speak quieter, 'dont interrupt' no delay in my responses, and hear speech clearly.
I wish visible words were generally accepted as a primary form of communication for some people.
I struggle to get along with most people, because they talk too fast, have invisible languages, and they hate repeating.
What state are you in?
Oregon is the fastest talking state. >.>
Its why I think everyone is known for being “quirky” in Oregon…. And also why its 51/51 in mental health… 😬
@Energetic_Nova If only we had text-based communications recognized as a necessary accommodation for some people. I dont know how to use the AAC program, I could use handwritten notes. I got that once, and I felt so happy, he would say the sentence/question and write it down, slide the notepad to me and I speak the answer. That was so helpful.
If only society would get out of their bigotry and kindly help disabled people more than they are. Meds and psyche units are not always the best options.
I think the issue is the systematic help is poorly constructed… I’m in Washington state and its near last place in mental health.
When I went to California… those people were so much more friendly in a stereotypical way. It was weird for me.
@Energetic_Nova I fear going outside, people call the cops, thinking I need to be taken away. I've had people say to me, "you should go to a mental ward"
I been in them, involuntarily. They dont help, they abuse me, but claim to be helping. They dont help to improve my life, and they reward me with early release if I attend groups, but groups feel like I'm participating in kindergarten, with puzzles and coloring pages.
They drug me, expect me to not be anxious. I fear people I dont know.
Washington and Oregon have too few beds to waste them on anyone not criminal. We need supportive housing. Tell them that.
@Energetic_Nova yeah. I need my own home, to choose my own time to sleep, choose my own food, choose my own entertainment, and not be bogged down by people I dont get along with. 'they' think I need to go into a group home.
I never want to live in a group home. The rules would cause me significant health damage, physical damage.. like what I get in psyche units.
I think I’m pretty lucky that despite sharing a house with a bunch of other disabled people I have my own fridge. And basically every two people has their own fridge. Like I share my fridge with my partner. So a normal person to share a fridge with. I live in a garage. I don’t have access to my own stove though.
But yeah I would say that having my own space to pace around and be up all night and watch whatever I want is the most important. I think I’m pretty OK with sharing a kitchen, as long as I have a tiny space for the super special items that I don’t want anyone else to take.
@Energetic_Nova YUK.
Id never trust my kitchen to people who would take my food without permission. Need my own cups, my own spoons, but someone else to clean them, as water is a sensory issue, and it hurts my skin, with visible sores, so housecleaning help for whatever the heck is damaging my skin.
I dont need "supportive services", I need domestic services. Help service language has so many different words, with different meanings. I only learned "domestic services" last week.
Green Roc Thoughts
Energetic Nova